Is chemo always offered for TNBC ?

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  • Going for my post op results tomorrow (grade 2 TNBC, 1.6 and 0.5 in left breast, lymph nodes thought to be clear).
  • I had wide excision and sentinel node biopsy.
  • Petrified I may not be offered chemotherapy.
  • Are triple neg patients always offered chemo ????
  • My oncologist also used the PREDICT analysis where you put in all your personal details and it shows you 10 year life expectancy. You can see with and without chemo.  
    My TNBC was 11mm, clear margins and no lymph node affected and having chemo and bisphosphonates significantly improved my 10 year prospects. 
    My husband and I decided chemo was the best option so you’re not left wondering ‘What if?’ 
    Everyone needs to make their own choice but as hormone therapy isn’t used for TNBC  chemo is the main option. 

  • My experience was similar to yours but my tumour was a rare apocrine sub- type. On receiving my results initially from my surgeon his opening line was it wasn't chemo responsive which left me in tatters for the next couple of months while I waited for my surgery & lymph node results. When I next saw the consultant he then told me I was being offered chemo & I had an appointment with my oncologist. She was great & explained that the tumour type was rare & therefore the data wasn't good enough. She also started my appointment by saying due to surgery & no lymph node spread they consider you to  no longer have cancer. The chemo is to mop any cancer  cells that may or may not have sneaked through. Triple neg is harder to treat afterwards as it doesn't respond to hormone treatment. I am currently undergoing chemo & I have just had my 3rd cycle. I seem to be coping ok. 

    Keep positive by sticking to your normal life as much as you are able & being kind to yourself.

  • Hi Vibby

    Just saw your post and wondered what your oncologist recommended. I wasn’t offered chemo for TNBC and I’m now confused. I’ll be honest, I didn’t want it so didn’t pursue, but everything I read now suggests it’s a must have. Mine was grade 2 invasive carcinoma NST.