I am currently having 12 weekly treatments of Paclitaxel and I have just had my 5th treatment. What side effects have others experienced? I am experiencing pins and needles in my hands and toes. I am aware that this is not unusual, but I am concerned whether these side effects will continue long term. Has anyone learnt about long term effects whilst having this treatment.
I certainly have more energy after the 4 EC cycles which is a great relief. As always nothing is straight forward in one's cancer journey.
Many thanks for the support from this community
Hi ricki
I have only had 2 cycles of paclitaxel so far after 3 cycles Of EC and, like you, have found that I feel much better on this chemo.
I haven't experienced any side effects, touch wood, but I was advised by my oncologist that if I got any pins and needles in my hands and feet to get in touch with them as it could be the start of peripheral neuropathy. I understand that it can be reversed if caught early enough so I'd give the chemo suite a ring tomorrow and mention it to them.
x
Thanks, I was going to do just that. I am seeing my oncology consultant on Tuesday and will check this out. I was told they could adjust my treatment according to my side effects. It all seems a fine balance. I hope you continue with no side effects.
I found weekly pax easier than EC. However every 3rd week was carboplatin and that was awful - felt shocking when I had that.
I think it’s trying to find a balance between treating and thr side effects. My onc told me he doesn’t like 12 weeks of pax and prefers 9 weeks as feels side effects like neuropathy can be worse if have 12 cycles. But then everyone is different and tolerates stuff differently.
Thank you all for the responses which helped me with my consultation this morning. My treatment dosage will be reduced by 15%. The 12 weekly treatments remain. A reduction in number was not supported as the best outcome.
It was good to be able to have a frank discussion.
One never knows what is round the corner.
Take care and onwards with your journey
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