I've just read my letter and seen this. I then did the worse thing and googled it. I found it says life expectancy is five years or less. Does this mean I only have five years to live as none of the doctors have explained this to me. I'm now so worried.
Hi chewy
I'm so sorry I haven't been on for a while. How are you? Hopefully not feeling so sick anymore. Where are you with your treatment now?
I have finished all my treatment. Having my other risk reduction op in April. Worried but it needs to be done.
Hope you are ok x
Thanks for your reply. Glad to hear you are doing fine and hope the risk op will get you closer to full recovery. I had finished all the chemo early at end of December due to numerous side effects, just didn’t tolerate very well to the different chemo, but fortunately I have responded well to the EC so the subsequent treatment was shortened. Had the surgery about a month ago, now waiting for the radiotherapy. You said previously that you have to take oral chemo, was that still the case? Do you require zometa (zoledronic acid) infusion as well? I know everyone’s treatment are different so wondering if you need that too?
Sending my best wishes
Hello I’ve just in the last week been diagnosed with TNBC and like others made the mistake of googling and now fearing the worst! luckily my lymph nodes are unaffected and I’m classed as stage 2. They want me to have 6 rounds of chemotherapy then surgery so scared too young to die! X
Hi Skf001
Welcome to the forum and sorry to hear that you have been diagnosed with triple negative breast cancer. I know it’s scary but breast cancer is very treatable. and it sounds like they found yours early.
I was diagnosed with grade 3 triple negative with lymph node involvement nearly 3 years ago and after after having chemo, surgery and radiotherapy I am now cancer free and have been for just over two years.
Wishing you the best of luck with your treatment.
Best wishes
Daisy53
Hi
sorry to hear you’re diagnosed with tnbc, I was too diagnosed last July and found myself devastated with the news. I also googled a lot in the beginning and got very depressed. It was the worst thing to do I realised. I had chemo, surgery and radiotherapy, though mine was not spread to the lymph nodes luckily. It was a long journey but be positive and patient with your medical team, they know what to do really and every case is different and treatment is unique to you. I’m feeling better and started doing some of my exercises to gain my strength and stamina, so don’t lose hope. I have a few more consultations with the doctors this month to check on my progress so I’m hopeful
Hi there,
I had tnbc diagnosed just over 3 years ago, grade 3. I had surgery, chemotherapy and radiotherapy over a 9 month period. All I can say is that I could not fault any of my treatment. Everyone was kind and caring, understanding of my fears and emotions.
At the beginning I was very upset, angry and frightened but when my treatment started I went with the flow.
I ate as well as I could and tried to be as fit and healthy before and during my treatment. Just listen to your body and if you need to rest, just do that.
I am now cancer free, have a new career and am loving life.
Just try not to worry too much and speak to your team if you are worried about anything, no matter how trivial you think it is. They really are there to help.
Sending love and support. Xx
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