Invasive ductal carcinoma (triple negative)

FormerMember
FormerMember
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Hi all, new to the forum. 49 year old. Following a lump found in my right breast on 5th December,  diagnosed with invasive ductal carcinoma (triple negative) on 16th December 2020. Complete shock as fit and healthy and no history of cancer in the family. After all relevant tests, treatment started with neo-adjuvant chemo on Monday, weekly paclitax and carboplatin for 9 weeks followed by 3 cycles, 3 weekly of epirubicin and cyclophosphamide. Surgery to follow then radiotherapy.

I know everyone reacts differently to drugs but at what point during the treatment do the side effects tend to happen?

  • FormerMember
    FormerMember

    hi 0271 4 years ago I had exactly the same and I had chemo of Epirus and cyclo every 3 weeks. I shaved my head before treatment so I didn’t have to see it get thinner each session and after a couple completely fall out and didn’t want cold cap. I put fake tan on my head and was bald and proud and has come nice hats. I was 51. I felt sick after each session but was given different tablets which really helped and prevented me being sick at all. But felt quite fragile. Had awful taste in my mouth so great to get in lots of refreshing drinks and fruit salad I even got jelly and ice cream. It gets more and more tiring so get lots of sleep but keep active and doing stuff whenever you can. I didn’t have radio or the same drugs as you and it’s come back in my lymph nodes but I know some other people who had same as you in terms of treatment and are still ok. So I have had lump in lymph removed and will start on weekly P and C in 4 weeks time so you will be ahead of me. Let me know how it goes. I’m pretty scared but once got first one done you’ll know how it all works. Oncologist says main thing is fatigue which builds up each week. But hey just get some sleep and let people look after you and do nice things when you feel good. Keep positive.

    kaye

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Kaye, I also have spread to axillary lymph nodes but no spread anywhere else. I'll let you know how the treatment goes and good luck starting yours x

  • FormerMember
    FormerMember in reply to FormerMember

    Oh I see. So we are sort of half lucky. Yes please do. Kaye

  • Hi 0271

    I have also been diagnosed with grade 3 TNBC 6cm with no lymph nodes involved  on 9th December. I have just turned 50 and am Asian in origin. No family history. My chemo starts next week. 4 cycles of FEC followed by 4 of Docetaxel. Feeling worried but positive at the same time. Keep in touch and we will be able to exchange notes.  I don’t know why but chemotherapy regimens are different in every NHS trust. 
    Good luck and stay positive as much as you can. 

  • FormerMember
    FormerMember in reply to TNBC50

    Hi TNBC50, yes it does appear there are many different treatments for BC. I'm on weekly treatment initially with my second one due on Monday. No major side effects so far however I'm sure they will rear their ugly head at some point. 

    Good luck with your treatment and fingers crossed it goes well Relieved

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Kaye, thanks for the advice. I will let you know how the weekly treatment goes. Good luck starting yours Relieved

  • FormerMember
    FormerMember in reply to FormerMember

    Hi just to say that with FEC I found week one a bit grim and week two better but bit tired and week three a good week so a good time to plan to do lots of nice things. Kaye