TNBC and Genetics

FormerMember over 4 years ago

4 replies
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At 59 I understand that I am a bit old for TNBC!!! My consultant has half mentioned genetic testing, although seems to think that its only available if you are under 50. As I understand it where TNBC occurs in someone older it can be down to a faulty gene, and that makes the whole thing a bit sinister? But how will they know if its a faulty gene if they dont do the testing? I'm also concerned that if it is a genetic thing that my daughter ought to be finding out a bit more................. and then of course there is my son?

I'd be really interested to hear any thoughts/experience?

latchbrook over 4 years ago

Hi Kerry

I'm afraid that I can't help with your questions but I spotted that your post hadn't had any replies yet.

You could also post this in the ask a nurse section of the community and one of the specialist nurses will aim to respond within 2 working days.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

floss b over 4 years ago

Hello Cloud123,

I'm 62 in December and found out in February that I was TNBC. I have often wondered about this genetic test but it has never been offered. I only have one son and no one else in the family has ever had BC so I presumed that they would not need to do it! Interesting!!!

Take care xx

Floss b

FormerMember over 4 years ago

I am 71 and found out in March I had tnbc. Mammograms have not shown it due to having 'dense breasts' which was never mentioned to me. Only ultra sound shows it-I felt a painful lump. There has been no mention of hereditary genes. No one else in the family has had it but I told them all to watch out for it and for dense breasts also.I have no children-sadly. I am thinking in future I want ultra sound checks not mammograms.

carolab over 4 years ago

Like you the possibility of faulty gene worries me. I am 75, no other person in family has had cancer never mind TNBC. I have asked about genetic testing but assume that is on back burner thanks to COVID but I still worry about my son and grandchildren.

c.a.b.

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