Research into TNBC and mammogram screening.

Hi Floss b,

This is really interesting, I was diagnosed in January 3 days away from finishing my radiotherapy which is the end of my treatment, I am 67 so have been having mammograms for years nothing previously until I found a lump, it makes you wonder doesn’t it, I hope all goes well with the rest of your treatment, stay strong and positive .Mimi121

Thank you mimi121. Looking like a red beef tomato moonface today courtesy of the steroids! But for the last time!!!

Really interesting, I have just been diagnosed with TNBC and mine was found in my first mammogram from screening invite two days which was two days before I hit 50!   It is 20mm so I don't know how long it has been there, but the mammogram saw calficiations (which turned out benign) and the recall of ultrasound and biopsies showed lump and infected armpit auxillary no idea how many yet.   First apt with oncologist is next week so hope to find out more, had a bad today but spoke to the mcmillian nurses and they were wonderful about explaining TNBC and the good things about my diagnosis in taht it was spotted early by screening!   Good luck and take care all x

This is very interesting. I am 75 and when I developed a lump in lymph node I had a mammogram and an ultrasound. Neither of these showed anything in breast. MRI eventually showed TNBC in breast which apparently was still caught early. Mastectomy and node clearance done and now on chemo. X

My tnbc was found on a mammogram when it was just 3.5mm so it is possible for them to be picked up very early.

Hello All, I'm not sure I fit the bill but then I don't seem to be as informed as a lot of you ladies, I think I was too scared to ask! I'm 63. I found a lump in November 2020 and was told it was TNBC and that it had grown very fast. I had a full mastectomy straight away. From Mammogram and MRI of breasts and Pet scan they thought it was 35mm - 40mm. It turned out to be 25mm (I was a bit surprised that after all that they still couldn't tell). Mine had not spread to lymph nodes but they recommended 3 cycles of AC and 12 of Taxol (I'm on my 9th and I'm struggling). I have been confused all along as to why I'm having so much chemo when it was found so early (I know I'm lucky in that), it feels very. very harsh. I've heard that they (I don't know how they are btw) are doing studies with 9 cycles of Taxol. I wish they had discovered that 9 were sufficient as I'd be finished by now but having come this far I suppose I must carry on. Sorry, bit in the dumps today, must try to perk up. Thanks, Anna

Hi Anna

Sorry to hear that you are feeling down in the dumps today.  It's only natural to feel that way sometimes so no need to say sorry that you are feeling down. Hope you feel better soon.

Best wishes

Daisy x

This is very very interesting. In 2015 I had a lump in left breast. Was told it was a cyst and the Dr drained it. Then he said there was another on my right and tried to drain this. It really hurt and was hard. I went for mamo and ultrasound. Called back a few weeks later for another mamo as they found mirco calcifications. Given all clear in 2018 having had yearly screening. Now this. Same place as cycst that was a problem. I am told mine is 3cm. Grade 2 so I wonder how long it has been there too? How big was yours when they found it?

Also all the best with the rest of your treatment. 

It's a long road eh...

Xx

Thank you Daisy. x

Hello cheeswell, mine was 25mm - I had a full mastectomy one week after diagnosis. I was told it was very fast growing (stage 3). I found it myself. They also said that if I hadn't found it, it would have spread. I'm so lucky that it hadn't. Although from what I can gather, TNBC responds very well to chemo. What was difficult for me was agreeing to the brutality of chemo when a) I felt fit and healthy and b) they couldn't see any spread and only doing it as a 'jus-in-case'.  What I. find really hard to cope with is the potential life-long side effects from having chemo, especially if I didn't need it (although we'll never know the answer to that).

What treatment/surgery have they recommended for you? I wish you the very best too. xx