Papillary Thyroid Cancer- Partial Thyroid Removal Surgery .

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Hello to all , 

I am new to this forum and this is my first post.
I have been diagnosed with Palpillary Thyroid cancer 4 days ago . Dr said I have thyroid cancer tumour of 9 mm - less than 1 cm and recommended 
Right Thyroid Lobe Removal Surgery yesterday and no requirement of Thyroxine medications.
 I get worried what if cancer gets spread to the other half of thyroid during the actual process of surgery or post surgery and then Dr leading to recommending to remove another half of thyroid too.  So I could not consent to surgery in yesterday's appointment at Guy's and St Thomas.

 Dr respected my decision to no immediate surgery and observe , has advised me to contact them in 1-2 weeks time if i have a change of mind , he has also booked a review in 3 months . However he was emphasising on the risk that it may get spread to close by lymph nodes and might require full thyroid removal surgery + removal of lymph nodes and lifelong hormone replacement medications .

At this point of time I am in dilemma whether I should go ahead with a partial thyroid removal surgery or to say no to surgery and active observance to check if this 9 mm tumour might just stay indorant /the same .? I am finding really difficult to make a decision about this surgery...

I am wondering if anyone has had a similar experience of being recommended a partial thyroid surgery and how was a prognosis after that/ experience and length of living with a partial thyroid. Sharing of any thoughts/suggestion/experience would be extremely helpful to me ..

  • Hi Shiva

    The decision to have surgery is yours and your medical team will know what to do for the best and give advice which they seem to have done. All my info is on my profile but mine was clear cut. 4 years ago I had a full TT and left neck dissection so RAI was definitely on the cards for me. I am so grateful for the care and attention I had and am still receiving. Take time to decide and ask all the questions and discuss any reservations you have. Many people have a partial TT and continue to be well. You will be looked after. Let us know how you get on x

  • I was recommended partial removal but once the results came back from lab it was confirmed cancer cells on my other side too so I have had second surgery now . 

    The cancer is not going to go away and you will have to decide which surgery is best for you . I personally wanted it out before it spread . 

    • I'm sorry to hear about your diagnosis.  I decided that however small my nodule was I just wanted the cancer out of my body.  I had the offending half removed after which the histology revealed that my papillary cancer had a follicular variant.  My surgeon hoped the cancer was limited to one side but given that histology he advised removing the remaining thyroid.  I went ahead and the histology for that found microscopic cells.  As much as I'm devastated about losing my thyroid and being on meds for life, I have never regretted my decision.  If I had not taken those decisions I think the anxiety that the cancer would grow and spread. It would have tortured me daily I think would not and that was too much for me.  I just wanted it all out of me.  
      my surgeon originally hoped that  total removal would not have been necessary but sadly that wasn't to be for me.  if I had my time again I would still make the same decisions as there was always a chance the cancer was be contained on one one side.  Sadly it wasn't so I had the second operation.  I was very lucky my lymph nodes were clear and I did not need radioactive iodine ether.  
      I took the view that removal would be better earlier rather than waiting and risking it spreading.  
      your medical team will give you their very best advice and recommendations so I hope that it helps you make the best  decision for you personally both clinically and emotionally.  
      wishing you all the very best 
  • Thank you so much for your very reassuring message. It have now decided to do go ahead with the partial TT surgery . I have contacted my medical team today and they will contact me tomorrow . 

    I am very glad to know that you have received good care from the medical team, I would like to wish you all the best xx

  • Thank you so much for your reply. I have now decided to go ahead with the partial TT surgery. 

    I am sorry to hear regarding cancer cells spread to the other side leading to your second surgery . How are you after the second surgery ?

  • Thank you so much for your reply. I totally agree with you  especially about the anxiety and torture caused by this cancer cell spreading and causing much more damage if we don't decide to remove it via surgery ASAP. Therefore I have also made a decision to proceed with the recommended partial TT surgery. 

    I am very glad to hear that even you had to do a second surgery, your lymph nodes were clear and did not require radioactive iodine .

    I would to wish you all the best xx

  • Hi 

    I am recovering very well so far and have dealt with this cancer in small stages to make it easier to cope less overwhelming. 
    I have finished my radiation Iodine which hopefully will do its job and clear any remaining cells left behind . 
    I wish you a speedy recovery . Reach out if you need any support from any of us . 
    good luck x

  • Thanks for your message and I'm sending so many positive thoughts for your surgery and outcomes.  Things take time to heal but have not looked back and I'm in a far better place that I would have been without the surgery.  It's a difficult decision to have to make that's for sure so I hope that you will have a little more peacecof mind having decided on a course of action.  I'll be thinking of you x