Newly Diagnosed Papillary Thyroid Cancer

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Hello,

Apologies in advance for the essay lol... I am 28 and have recently been told I have Papillary Thyroid Cancer. Feeling a bit surreal and like it's not happening to me because I am otherwise feeling well and fit/healthy and able. I am sort of looking for advice on whether or not it ever sinks in, as am concerned that I am in denial a bit. I have spoken to my parents and some friends about it in the hopes that would help it feel more real but it doesn't. I am scared that this is the tip of the iceberg at the moment as I have not yet had my initial CT scan to check if it has metastasized anywhere other than my thyroid & left-side lymph nodes in my neck (CT scan is next week). Although the consultant I saw on Monday that confirmed the news to me has said that it's rare for it to have spread elsewhere that quickly, since it is slow growing, I am concerned at the possibility it has because I put off having the lump in my throat checked for a long time. I also worry that because of this, although being told my cancer is stage 1, that this could change once the scan has been done. So feeling a bit like I don't know what to think or how this is really affecting me and will affect me going forward... I am due to go back to work tomorrow after a couple of days off and just not sure how I am supposed to concentrate or act when only my management team know what's going on, and I'm not sure if I want to share it with the rest of my team yet (if ever). 

Anyway that's a lot of info, I guess I just don't know what to do with myself.

  • Hi I've just been  told I have papillary carcinoma thyroid cancer. I have been having treatment for melanoma to stop it coming back but stopped now as to many side effects and fortunately it's low risk of coming back. Now I've got to deal with thyroid cancer. Got to see surgeon once blood tests are back to normal. Having a ebus on Tuesday as swollen lymph node in chest hopefully it's just caused by infection as medication was causing a cough. I was not expecting it to be thyroid cancer. Two cancers in a row.

  • Awwww I'm sorry to hear that Miss Mole.

    Hopefully it is just of the infection Fingers crossed

    Let us know how you get on x

  • I found out I had cancer last week it was growing slowly I had a biopsy but it was inconclusive so they took it out to check it was cancer I am now scared I will get cancer again 

  • Hi there,

    I just wanted to reach out and share my experience with you, as I know how overwhelming it can be to navigate a situation like this. Last year, I found myself in a similar place. I’m a 34-year-old mom to a wonderful boy, and I had a few nodules discovered in my thyroid during a routine ultrasound. After eight FNACs, the results came back indeterminate, which was incredibly stressful. Eventually, my doctors decided to go ahead with surgery to remove the nodules, and it felt like a long journey filled with uncertainty.

    After the surgery, I had a full biopsy done, and it turned out to be stage 1 papillary thyroid cancer. The whole process took about 15 months, and I can honestly say it was one of the most challenging times for both me and my family. There were moments of fear and anxiety, but we held on to hope and believed that everything would turn out okay. I completely understand how you’re feeling right now.

    With thyroid issues, it's common to experience fluctuations in hormones, which can heighten emotional stress. It’s really important to remember that your family might also be feeling uncertain and worried, which can make it hard for them to provide the support you need. They might not fully understand what you’re going through or how to help.

    In my doctor’s words, papillary thyroid cancer is considered one of the "best" cancers to have. It’s slow-growing, and recurrence is rare. So, I encourage you to focus on the positives: your situation was caught early, and a surgical intervention is often enough to manage it effectively. You’re still young, and the cancer likely hasn’t had enough time to grow significantly.

    During my journey, I found it helpful to stay busy. I worked full-time right up until my surgery, even managing a half-day on the day of the operation. Keeping my mind occupied helped me to stop overthinking and worrying excessively. You mentioned that you feel healthy and fit, and that’s a strong sign! Your body is resilient, and if it were a complicated case, you would likely be experiencing symptoms.

    I also turned to my spirituality for comfort—reading the Bible, meditating, and praying helped me find peace during those tough moments. I encourage you to do whatever brings you joy and relaxation, whether that's spending time with loved ones, engaging in a hobby, or simply taking a moment for yourself.

    Out of curiosity, how did they confirm it was papillary thyroid cancer? Did they use FNAC? And what’s the size of your nodule? Are there more nodules present that have been deemed benign? Remember, you’re not alone in this. It’s okay to have fears and uncertainties, but try to embrace the hope and positivity that can guide you through this. You’ve got this!

    Take care, and I’m here if you need someone to talk to.