Hi,
I arrive here almost one year into my diagnosis of papillary thyroid cancer. I had a Total thyroidectomy and right side neck dissection back in January, followed by RAI (radiation) in March.
To be honest, after my treatment I thought the whole experience would be consigned to my 'life experiences' and dinner party stories folder and that I could reel out my journey for the amusement of others without having to care about it again.
What brings me here now (I have not stuck with any cancer forums for more than a couple of days previously) is that I find myself slightly distraught at the prospect (for clarity, it is just a prospect at this stage) of further treatment which could well be more surgery ! I have finally succumbed to the fact that I can't just shrug this off, work through it and let it pass - I am acutely aware that I need more help.
I had an ultrasound just yesterday which revealed two suspicious areas which now need a FNA (biopsy) to determine if it is cancer. I am awaiting a rerun of my thryoglobulin tests (with 2 x Thyrogen injection) as they forgot to test thyroglobulin last week when I did it the first time.
So I am in that anxious period between 'things ain't right' and 'everything is fine/you need more treatment' - it is a difficult one to push to the back your mind to be honest.
So there we are, hello all and sundry, didn't want to turn up without an entrance...I hide everyone here is doing well and if anything I say resonates, then know I am here for all you wonderful warriors too !
Hi
Welcome to the group. I also have papillary thyroid cancer - tall cell variant, and was diagnosed 10 months ago so I’m just waiting to see how successful the RAI treatment was. I totally understand how you’re feeling - the thought of having more treatment leaves me cold but I know I’ll go along with anything suggested. You mentioned getting help, if you’ve not already tried them, I can recommend the counselling services offered by MacMillan. It was really helpful for me to talk to someone I didn’t know and the advice given was really helpful. Hope all your tests go well.
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