Swelling below my collar bone

Hi Lily60

I'm sorry that no one from the group has popped by to share their experience with you since I directed you here from the New to the Community group. Of course it might be that no one here has the experience you're looking for or just that they haven't seen your post yet.

While you're waiting for replies it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

I haven't experienced the same as you @Lily60 but just wanted to say something rather than nothing.  I am waiting for my op date which should be soon for total thyroidectomy and dissection of lymph nodes and feeling apprehensive but know I have to go through it.  Hope you are ok and wish you all the best.

Hi Lily60. Just wanted to say I am thinking about you. Not had quite the same as you but know that feeling of worry and being unsure and anxious. I had a full TT and left neck dissection end of February and RAI in May. In April I had swelling in my neck and phoned the specialist nurse. My endocrinologist examined my neck and said it was my carotid arteries I was feeling! I have a very slim neck and see and feel everything there. Maybe a good thing as I could easily see one of my neck lumps before surgery! I too felt anxious as everything seemed to be going on at once! Had mammogram before surgery - all clear- routine bowel test- all clear. It was a tick list I was continually ticking off! Before RAI they did a heart check and I was given a heart ultrasound after RAI- they say I have a leaky valve!!! I cried and laughed at the same time thinking what on earth is next?! However all settled down and hopefully normality returning. Back at school  a few days before end of term but not yet teaching. I wish you all the luck in the world and you’ll be just fine. Here anytime for a chat. Take care x

Hi Latchbrook thanks for getting in touch I have just wrote my whole journey so far into my profile.

Hi Latchbrook I just filled in my profile. thanks for getting in touch 

Hello Petal66

thanks for getting in touch and good luck with your op, hope all goes well for you

Hi Dexx

Unlike you I have a very fat, short neck!!

Its probably just fatty tissue but I just want to be sure that all it is. It just seems one thing after another! The majority of it has been a positive experience and everybody has been great and very helpful. I haven't been back to school since march (I was a classroom assistant) couldn't cope with the tiredness, so I'm thinking of retiring now, school finishes this week so I have the whole summer to think about it.

It was lovely to chat to you, take care

Thank you Lily60 and best wishes to you too, hope everything turns out to be fine and you get your appointment soon. xx