Multifocal papillary thyroid carcinoma

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Hi everyone,

I‘m new here. I’m 34yo and had a total thyroidectomy 2 weeks ago for suspected papillary thyroid cancer, which has now been confirmed as multifocal papillary thyroid carcinoma following histology results. I was told that not only did I have a tumour on the right lobe, but also many little cancer cells on the left and also in my lymph nodes( I think she removed 4/5). 

My ENT consultant has told me that I need discussing again in the next MDT and referral to another top consultant for ? Further imaging which would likely be a PET/CT. Up to now I’ve only had a neck US and biopsy and then the surgery. When I asked the consultant about the possibility of having mets, she said ‘that’s the thing, we don’t know’. This has given me a lot of anxiety. She did mention earlier on in the process that i could need radio iodine treatment so I now await for the next stage treatment plan.

Is anyone else going through something similar and can share their thoughts/ experience, as I feel very alone with this. Would be much appreciated. 

Best wishes, 

Jade T