Not in the plan...

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Hi Everyone, hope you are all well?

I had my surgery of total thyroidectomy, right sided parathyroidectomy and central & right neck dissection a couple of weeks ago.

Initially, everything was fine and dandy, apart from having a very sore bottom from being on the operating table for around 8 hours!

I was commenced on levothroxin the first day post op and also calcium supplements as the right side of my parathroid was taken out at he same time.  

A couple of days after the surgery I started to experience pins and needles in my hands, feet and face but the team didn't seem to worried, saying that is common and my remaining parathyroids would start producing enough PTH to level off my calcium levels accordingly.

Sadly though, this didn't happen....I woke up one morning to find more pins and needles to such an extent it felt I was trying to finely debone a fish wearing mittens lined with lead!  My hands closed up and I started losing the ability to speak along with suffering from laryngeal spasms meaning my airway was unstable...

Thankfully the patient opposite me saw I was struggling and raised the concern and in seconds I had the crash team working around me.  I had gone into tetany, where my muscles had fully constricted and contracted...the muscles were burning with lactic acid build up and I have genuinely never experienced pain like it...I honestly thought as my airway kept closing over that I was going to die....

During the scariest moments it was really weird, I was terrified, thinking about my family and what would happen, yet I was more upset that I was going to miss our Puppy grow up!!

After a lot of morphine and several calcium infusions things settled down but it meant I had an extra 4 nights in hospital having regular blood tests to monitor calcium levels and further infusions.

I was discharged home a week after my initial admission and was doing ok until this Sunday morning when the pins and needles and tetany returned which resulted in another admission and further infusions...

My calcium levels have now levelled off after another increase in my medication so fingers crossed things settle down!

Due to start Radioiodine treatment shortly, so I'm praying that is going to be an utter anti climax and simply involve me being alone in a room for a few days!!

  • That's exactly what RAI is: anticlimax alone time. Some people enjoy it (I did) and some do not. But it's usually once in a lifetime experience that you are not required to do anything other than just to stay in your room.

    I hope your calcium will stabilise as soon as possible. 

    Good luck with the rest of treatment.

    Take care x 

  • That must have been very frightening for you @ArchiesDad.  I had low Calcium post op too and had terrible cramp in my feet all night after the operation, I couldn't get any sleep for it, my toes were really weird and in a funny position, I hated it.  Turned out I was also low on Calcium and was kept in for 5 nights, and was on Calcium for around 3 months.  Wasn't anywhere near as bad as you seem to have suffered though thank goodness.  Been fine since, but then I didn't have my parathyroids removed, or if I did no-one told me, and they seem to have started working again now.  The worse things must have been your airways, that must have been incredibly scary for you.  I hope you are doing well now and on the road to recovery, take care x

  • I didn't mind it @IsabellFel apart from the fact there was no remote control for the TV, so I couldn't have subtitles on or enjoy a DVD of which there were many to choose from.  Because I was drinking so much water and running to the loo all the time, I couldn't stop the discs.  Also they forgot to bring me food twice but I was able to ask them and ended up with something, just a sandwich though and not what I had ordered.  Apparently they keep forgetting anyone is in the room and daren't come in (not the nursing staff, just the catering staff).  I couldn't sit comfortably as the chair in the room made my back ache and I was constantly switching from bed to chair so was really happy to get home after waiting for a voluntary driver to pick me up, and not arriving after 6 1/2 hours of waiting, I was sent home in an ambulance, just in time for Christmas!

  • Hi

    I did not have TV in the room at all Joy

  • Oh that's a shame, I thought they all had them.  Did you take something in with you to keep you entertained?