Aftercare

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Hello,

I had a TT and full neck dissection exactly 2 weeks ago today. I was not told of any after care other than rest and dont lift anything heavy by the nurse who discharged me. I was in surgery for 11 hours due to the complexities of my surgery, which i was told went well. I was told prior it would be 6-7 hours so this was a bit of a shock. I feel at the moment my chest is 'comming back to life' and i cant stand anything on it as it causes what i can only describe as an intense tickling feeling, its quite unberable on times and i cant sit 24/7 without a top on lol!, does anyone else have any experiance with this or any tips please? Also what aftercare did others do? Did anyone go out for short walks or stay in for a couple weeks? Any advice would be much appreciated. I currently have some weakness in my arms also and cant lift them as high anymore, so im assuming i will have some physio for this.

Thanks

Aby x

  • Hi Aby, I found going for a short walk was good for me and my hubby who struggles with pain on a daily basis and we find we stay indoors far too much.  Also pottered around the garden watering our fruit and veg as it was summer and great to get outside, but I didn't lift anything heavier that a 2 litre plastic bottle of water to water the plants, my hubby wouldn't let me lift the watering can, and if your shoulder is painful then you will want to be careful too as well as not putting a lot of strain on your neck especially with a full neck dissection.  I know what you mean about the intense tickling feeling, I had one side dissected and I couldn't explain how it felt, but it was tender and had a strange sensation, still does a bit after 13 weeks if I rub or touch the area.  I called it a tingling sensation and still not sure if that is the best way of describing it.  It fades slowly though and although it is irritating at times it will get better.  Sorry to hear about your arm, it can be frustrating when you want to do things and can't.  I severed a tendon in my arm a couple of years ago and it was incredibly painful for months, in fact well over a year, it was when I was diagnosed with Cancer that I suddenly realised it wasn't as painful and had faded considerably.  Maybe someone or something was giving me some respite and saying you only have to deal with one thing at a time lol  Hopefully you will get some advice and support at your post op appointment, hope so.  Take care of yourself and just do what you feel you can and rest if you can't.  11 hours is a long time and your body is going to take some time to recover.  The anaesthetic can take a week to get out of your system, so it's early days for you yet.