Increased TG Levels with PDTC

Hi Emhar and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I don't have the experience you're looking for, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' your post back to the top of the discussion list where it'll be more easily spotted. I'm sure someone from the group will be along shortly to share their experiences with you.

While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi thank you, unfortunately it wasn’t the best news and the reason for the increased TG was due to spread to my lungs. I have around 20 nodules the biggest being about 11mm. Just waiting to decide now on the next step either watch and wait or try RAI. With it being poorly differentiated there’s a risk I believe of it not taking up the iodine. To top it off they also found a nodule in my breast from the CT Scan so now waiting for tests on that too 

I'm really sorry to hear that Emhar. It must have been particularly difficult for you when they said that they've also found a nodule in your breast and you now need tests for that as well.

Sending a big ((hug))

Sorry to hear this @Emhar.  I also have two tiny nodules in my lung and at the moment am waiting for RAI, I have an appointment early Nov so will know more then.  Fingers crossed for a good outcome for both of us xx

Fingers crossed for us. Hope the RAI sorts the little suckers out. Best of luck xx

Thank you Emhar, I was told right from the first appointment when I was diagnosed after scans and biopsies, that I would need RAI probably because of the spread to lymph nodes and lung.  I am assuming you didn't need RAI after your operation, and sorry to hear that now you will need further treatment. It must be dreadful going through that and then finding out it has spread.  Let me know how you go on and what they say at your next appointment.

I had RAI 5 years ago after my initial surgery and that worked so keeping everything crossed it will again. I will let you know and keep me posted on your progress too x

I see, I jumped to conclusions a bit there, and I do realise some people have to have more than one round of RAI.  So good luck for future treatment for both of us xx  You let me know how you go on too.