Hurthle cell lesions

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Hi, I'm new here.

I found a lump on my collarbone back in August, assumed it was nothing to worry about. Saw my GP in September, he said he was worried. I had an ultrasound, a 11mm nodule was found on my thyroid. I had 2 biopsies and a chest xray. The thyroid lump came back as Hurthle cell lesions, the other lump inconclusive. I have a shadow on my left lung, behind my heart. I feel fit and well, I have a slight cough, but no other symptoms. I had a CT scan today, results will be given to me at a lung cancer clinic on Tuesday. I'm so worried. Has anyone else had Hurthle cell spread like this? I am feeling so terrified, really need some positive stories. I'm 48, asthmatic,  type 2 diabetic, happily married mum of 3 adult children x

  • I think the silence may be due to us not being entirely sure what you're saying. 'Hurtle Cell Lesions' - are you saying that you've been diagnosed with thyroid cancer? I am not sure based on your post and the timing that you describe. Hurthle cells in a thyroid are not that unusual and only about 15% of biopsies that show them turn out to be thyroid cancer.

    On the basis that I don't know what you've been told that you have, I'm not sure how you're concluding that cancer (which I'm still not sure about) has gone to your lungs.

    IF you have cancer and if it has spread to your lungs, it will be thyroid cancer in the lung rather than regular 'normal lung cancer' and so should be much more treatable than the usual type of lung cancer. Thyroid cancer secondaries should respond to treatment with radioactive iodine because they retain the characteristics of thyroid cells, including the ability to pick up iodine.

    I had a Hurthle Cell Carcinoma - a variant of follicular TC - 11 years ago It was a bit one - 7+ cm in diameter - but it's never given me any further issues. I know several other people who had HCC and all are still doing fine. 

    If you have more information that can help us to better understand, I'm sure we'll do our best. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Sorry, I didn't explain very well, the doctor told me it was thyroid cancer, hurthle cell type, he said the good news is it is very treatable, but you're not out of the woods yet, we still have the shadow on the lung to deal with, so I'm sending you for a CT scan.

    The note attached to the CT form said "shadow behind heart. Infection? Mass?"

  • Thanks DeeDee, that's a lot clearer. So firstly welcome to the Thyroid Cancer club but do try not to get overly anxious. Since even the scan report says it's not clear what you've got behind your heart, I'd suggest - if you can - to try not to let your imagination run rife. Have you had Covid? That's potentially related to the ?infection possibility.
    Thyroid cancers can and do spread although more often than not, they don't, but when they spread, that magic property of still acting like thyroid cells gives a lot more options than having a lump in your chest of any other secondary origin.

    Please let us know what the doc has to say when you get the results of the lung scan. 
    Did you have your thyroid removed already?

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Thankyou for replying, no I haven't, so I'm not sure how they diagnosed hurthle cell, from reading stuff online it seems like it can only be diagnosed after the thyroid has been removed? I am so overwhelmed at the moment. It doesn't help that I have generalised anxiety disorder, particularly health anxiety x

  • I believe that HC carcinoma is usually a variant of follicular and follicular TC cannot be diagnoised without taking out the lump and looking at it post-surgery. So, I guess there's still an outside chance that you might come back clear once it's removed. But only time and surgery will tell on that.

    Whatever happens, just stick around, ask us lots of questions and we'll do our best to help.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous