Hi all,
I had my TT and a few lymph nodes removed years ago and then had RAI. Was put on 100mg of thyroxine which then gradually went up to 150mg and then slowly brought down to 125/100mg on alternate days. Then, in October I was put down to 100mg. I had not had a blood test since then so didn’t know the impact of the lower dose on my levels until this week:
last week I had some neck pain that the GP thinks is muscular but she sent me for a blood test to check levels etc and today she called me and said my level is at 4.5 - which I know is outside the limit for TSH. Is this because of my lower dose of thyroxine? Am I on too low a dose?
it’s making me worried that there is something else going on, and as I am a bit of a worrier anyway, it is sending my anxiety sky high
i am a bit rubbish at taking my thyroxine and do forget the odd day here abs there and sometimes I don’t wait a full half hour before having food/dairy - would this affect my levels a lot too?
The GP is sending my results to the Marsden to check and has asked me to take 100mg in the week and take 125mg at the weekend in the meantime.
any advice or reassurance would be great - I also am a bit clueless when it comes to levels and what affects them!
Thanks in advance : )
jo
Hi Jo
It's always a worrying time when something is discovered that you don't understand and waiting for answers can feel like it's taking for ever.
I can't answer your questions but I noticed that your post hadn't had any replies yet. Replying to you will 'bump' it back to the top of the discussion list where hopefully it'll be seen by someone who can help you further.
You might also like to pop your question in the ask a nurse section of the online community and one of the specialist nurses will aim to respond within 3 working days. If this is something that you'd like to do clicking on the link I've created will take you straight there.
x
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