Hi everyone.
I haven't been on here for a while as I have just been trying to get on with life really after my diagnosis of papillary thyroid cancer and full thyroidectomy nearly three years ago.
OK so two weeks ago I was asked by my oncologist to take two thyrogen injections one day at a time and have a blood test three days later to see where we are at.
I got a letter back from oncology last Saturday and it said that my thyroglubolin levels after my thyrogen injections where at 0.6 indicating that I was a biochemical incomplete patient. I will be seen again in six months time but I don't know what this means and I'm in sort of limbo.
Can someone pls shed some light on this?
I'm a 47 year old male.
Thank you
This is a really great result.
The two thyrogen injections work to stimulate any thyroid cells still in your body to produce thyroglobulin. It's a way of exaggerating behaviour or such cells and enhancing the sensitivity of the blood test by over-stimulating thyroid cells to do their thing (in this case, making thyroglobulin).
It's a similar effect to going severely hypo (and many of us who've been here a LONG time remember having to do a process of up to 6 weeks weaning from T4 to T3 and then on to nothing in order to get the same effect).
A result of 0.6 is really good. The lower the better. Under 'unstimulated' conditions, your Tg would be way lower than that.
You are 'biochemically incomplete' because you don't have a thyroid gland. Not a nice way of putting it, but factually correct.
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
Hi babaral,
Thank you for replying. Im really glad it means.good.news.but its the way they worded the letter. Saying "sadly he's in the categorie of a biochemical incomplete patient" why use the word "sadly"? Got me. In a a right state.
Take care and stay safe
Honestly, sometimes you have to wonder where these people left their common sense and humanity.
Life without a thyroid is not a reason to be sad. It's a case of 'better out than in' when a part of your body has gone rogue and tried to kill you.
I say CELEBRATE you biochemical incompleteness!
And let's all be glad that we lost one of the few bodily organs whose function can be largely replaced with a couple of little white pills, allowing most of us a darned good life post cancer.
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
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