Where to start ?

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This might be a bit of a long post. In the middle of lockdown my husband of 34 years left me, I’d been with my husband since I was 18 and I am devastated, I didn’t see this coming. 

At a time when I am at my lowest, my body decides to kick me when I’m down. Had  an ultrasound on my remaining side of my thyroid and the suspicious nodule hasn’t increased in size so I was expecting it to be put on watch for another 6 months.

However, the same day I went to see the neurologist about my eyes. He talked about some cancers causing an autoimmune response and  that it’s possible that that is attacking my nervous system. He wants the remaining side removed to rule out any possibility of cancer there, but he also can’t rule out that I don’t have another cancer elsewhere in my body causing the autoimmune response.

He is going to speak to my thyroid surgeon, I have to get another MRI, a PET scan, a lumber puncture and a whole load of blood tests. I also have to go into hospital and receive intravenous steroids to suppress my immune system and when my daughter tells my husband this I get the coldest text message ever, saying sorry to hear you’re going in to hospital, hopefully it’ll just be for a day or two, he couldn’t even pick up the phone. I feel so let down

Sorry for the long post, I hope everyone is okay out there, take care x 

  • I’m so sorry to be reading this Oban17

    There is nothing worse than feeling so let down in your time of need. I’m just glad to see your doctors are taking things seriously and looking at everything. It’s better that way, so nothing is missed. Please keep us in the loop, as to how you are getting on.

    Big hugs from across the water

    Lis

    x

    Minouche

    Living in Mexico

  • FormerMember
    FormerMember

    Hello Oban17

    I have never met you but I know you are a wonderful person with a kind soul. Please do not forget that. 

    For me having the remaining part of your thyroid removed was less scary than the first operation. I knew what to expect. Yes, you will have to take Levothyroxine in the morning and wait for an hour before drinking tea, coffee or eating.

    Yes, your husband should be there to support you. Perhaps he is finding it difficult and is not sure what to do. I hope he attempts to talk to you more.

    Stay strong! I will think of you in my prayers.