I was wondering about any experiences of thyroid cancer being found only during/post surgery to remove half/total thyroid. I recently found a 6cm nodule in my left side of my thyroid, and the ultrasound & biopsy have come back to look clear. Its provided much relief during the whole journey, but the closer to my surgery date I keep thinking how I've heard "false negatives" are more common the larger the nodule & things like that. I was wondering if anyone had or has heard experiences where cancer was found during surgery or post surgery.
Heya Ag89
Welcome to the forum, though I'm sorry you need to be here.
First of all, if your ultrasound had come back as clear, you wouldn't have had the FNA. Then, if the FNA had come back as a T2, which is clear, then you wouldn't be put forward for surgery. So this would indicate that neither came back clear and instead came back as suspicious. I'm guessing your FNA was a T3 result?
If you have a look at my post here - community.macmillan.org.uk/.../anyone-diagnosed-with-thyroid-cancer-after-tt - then you'll see the answer I gave to someone who asked the same thing the other day, and hopefully it will answer your questions. I think one thing I didn't say there, is that follicular thyroid cancer can only be diagnosed via surgery, and cannot be confirmed with just an FNA. But with that said, generally thyroid nodules are benign over 90% of the time and are often ruled out as anything else at ultrasound or with the FNA. But yes, sometimes after they get the lump out they find it's totally benign. But this is why they only take half out, so that you still have half and can continue on with life afterwards, as you did before.
If the link hasn't answered all your questions, please do shout up and ask anything you like, and I'll do my best to help answer them for you!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Thank you for the reply! I was told any nodule over 2cm needs a FNA by my doctor, and that we were just doing a biopsy based on how large it is. The ultrasound report says "concurrent with hashimoto's" and after the FNA I was given a call that it was benign not a classification.
I will go look at the link you posted now! I appreciate the response!
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