I had a hemithyroidectomy three weeks ago to remove a nodule (indeterminate findings from needle biopsy).
The surgeon told me the day afterwards that although the nodule he removed was hard (which, from the way he said it, I'm guessing makes it more likely to be malignant?), it didn't look cancerous.
However, at my follow up appointment two weeks later, he started off by asking if I had anyone with me, which of course made me think the news wasn't good. When I asked he said, yes, the findings were suspicious for malignancy and that the nodule had been sent to a more specialised lab for further tests. Nothing is definite, he said, but he went through what would happen if it WAS cancer i.e. he would present my case to the oncology team who would then decide what should happen next.
I had to see my GP last week to get my wound checked as it was a bit nippy (all fine - I was worrying over nothing!). I asked her about this additional testing and she said it was some kind of staining that not all labs are able to do.
Does anyone else have experience of or know about this kind of testing? From the demeanour of the surgeon it seems he's pretty definite it's cancer but perhaps that's just me getting ahead of myself? It could be another 2 weeks before I get the results. The time is really dragging!
Many thanks
Heya
Welcome to the forum, though I'm sorry you find yourself here.
When you stain a sample, you are looking to see the cell structure and to work out what sort of cells you're dealing with. It's one of many tests they often do, but the equipment and training is expensive, so not all labs have the ability to do it. Personally, I'd rather that if the results weren't all back, they send you a letter or call you and say just that, then re-arrange your appointment. That way, when you go along they have all of the answers for you and you can leave knowing exactly what's going on inside of you, and what's to happen next. Unfortunately, that doesn't always happen and so sadly, too many people are left in the situation you are in, where you've got no answers just vague hints and guesses. So I'm sorry you find yourself in this position.
I'd say that the consultant probably knows what they are talking about, as they'll have done these operations so many times they'll have a good idea of what they are looking at. However what they won't know is the type it is.
So I'm afraid it's time to pull out the distraction techniques! Right now, my plants in the garden seem convinced that it's Spring, so why not do some spring cleaning? Find that forgotten cupboard where things are summarily dumped - usually the cupboard under the stairs - and each time you start to worry, get in there and clean it out. Weed and get the garden ready for spring. Go through your closet and see what can go to charity. Find a hobby. Go to a spa. Have lunch/dinner/drinks with friends. Go to a show. Etc etc. Whatever will take your mind off waiting for results and make you smile or feel like you've accomplished something. Now is the time to just go for it!
Lass
xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Thanks so much for this really helpful. You are very knowledgeable, and wise!
Yes probably better to have had my follow up appointment postponed. Surgeon said he considered doing this. But there had been a bit of a mix up a couple of months ago when my GP told me I DEFINITELY had cancer when in fact the results of the needle biopsy were indeterminate. He said that, for this reason, he wanted to speak to me in person. Considerate really but probably not best for me!
Seems like thyroid cancer is a tricky one to diagnose with certainty!
Results today. Minimimally invasive hurthle cell carcinoma found in nodule. Won't know for a couple of weeks if more treatment is required but could just be a watch and wait thing. So, at the moment anyway, I feel quite lucky and just glad that it was picked up (by my dentist) and the lump has been removed.
Wishing everyone else well xx
Heya,
Well boo to it being cancerous instead of benign! Glad you're feeling ok about everything though, that's always a good start to anything like this.
You know where we are if you ever need to chat about how you feel or what, if any, followup they want to do.
Look after yourself in the meantime!
Lass
xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
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