Shocked

Potter37

Hi Carl and Merry Christmas!

I'm sorry to hear that you've recently been diagnosed with follicular thyroid cancer after being told previously that you had a cyst.

I haven't had this type of cancer but I do recognise only too well the shock of being diagnosed with cancer when it was the last thing you expected. 

I can't answer your questions but by replying to you it will bump your post back to the top of the first page where, hopefully, someone with the right experience will see it and be able to help you.

Wishing you all the best

x

Hi Latchbrook,Merry Christmas and thank you for the reply 

All the best

Carl

Hi Carl

So sorry to hear you are going through this. I hope you managed to have a nice Christmas Day as I know its so hard to put the worry out of your brain.

I had a similar experience in that when they took my thyroid out [after an inconclusive FNA} they said it had a tiny cancer in. Nothing to worry about, no RAI. The only problem was I still had a massive lump on my neck they hadn't removed! which I was panicking about. Took me 3 weeks of badgering for another FNA and to get them to take me seriously. They were almost patting me on the head and saying "well well do another FNA if it will make you happy!" The next FNA revealed a massive cancerous lump {as I had told them} and they went into panic stations and got me back in again asap  for a full neck dissection to remove what they had missed. Then ended up with RAI and the full works.

So I guess Im just telling you this to say you aren't alone, and it is a shock when your diagnosis suddenly swings from "its all fine, dont worry!" to panic stations. 

I think FNAs and ultrasounds are not very sensitive and sometimes miss stuff. I think in my case, people mis reading the pathology report didn't help.

I look at it as a good thing as it means they focus more sharply on it when the diagnosis has changed. In my case it meant a more extensive neck dissection which found another little cancer that would probably have been missed if they hadn't ended up being more thorough. So it all worked out for the best.

It is very frustrating though. The good thing is that they are now pulling out all the stops to get you in asap so you will soon have the cancer out and can focus on recovery.

Wishing you a peaceful and relaxed Boxing Day as much as possible.

x

Hi Phoenix Rising,

Thank you so much for the reply ,Christmas was ok it’s just difficult to get my head around it really,if I am honest I don’t think it has really hit me

I have spent the last 6 days comforting my family about it and telling them it will be ok it’s just really odd ,

it’s hard to not think about if it’s spread etc

I am sorry you have been through the mill too and I hope you had a lovely Christmas and are on the mend 

Thank you again for taken the time to reply

Carl

No problem. Im glad xmas was Ok. Yes I do think you stay in shock for a while as it doesn't seem real and you end up looking after everyone else whilst internally going "WTF!!??" I think thats a very normal reaction .Macmillan Nurses are very good at support so make sure you make use of that.

You take care of yourself and hope everything goes smoothly for you in the new year and you have a nice boxing day

xx

Thank you so very much ,all the best 

Carl 

Hey Carl

I'm so sorry you are going through that. I'm going through something very similar at the moment, only my surgeon had just performed the lobectomy and I need to wait to hear if it's malignant. 

Hang in there. Sorry I don't have any useful insight, just wanted to say you're not alone. It's hard.

Hi Jam,

Thank you for the reply,you are right it’s so hard to function knowing what’s going on but we have just gotta keep going ,let’s hope you receive the right results when they comeback 

If you need someone to talk to don’t hesitate to message me

Enjoy the rest of Christmas and have a great new year try and stay positive 

Carl

Heya Potter37

How are you doing now? Got your head around it a little more now?

Any word on further treatment?

Lass

xx

Hi Lass, it’s hit me now to be honest ,had the other half removed on Monday ,they said I would need radio iodine and I will be passed on to an oncologist,just have so many things going around in my head ,hope you are ok and thank you for the message 

Carl