Recurrence. What will they suggest?

Hello again Phoenix,

Sorry to hear you're back on the rollercoaster of testing and waiting for results and decisions.

I've not had a similar situation myself, but I have read and chatted to people who have been in a similar place to yourself. The problem is, there are too many variables to even guess at what will happen next. Everything you've suggested is possible, along with giving you another dose of RAI to try and zap everything rather than operating again. It all comes down to your original lump and how it looked, if there were any variations, how the capsule looked, and probably a whole host of other things. Then there's how things are looking in your neck now. All topped off with how cautious/gung ho your consultant and the others in the MDT are.

Whatever they decide though, you know you can cope with it as you've done it before. You also know you've got us here to help you through and chat to whenever you need to. I'm just sorry I couldn't give you a more definitive answer.

Lass

xx

Hi Lass.
Thanks so much for replying. I know there's no definitive answer. So many variables .
I just hate this waiting on the MDT's decision thing so much. I am a control freak so the lack of control of it drives me to distraction . Don't even know when or if they will meet to discuss it and am waiting to hear from the Endo so its all so vague and up in the air. 

On the plus side I appreciate that they are being very cautious and double checking everything. I moved from my last Endo as he was totally uninterested in making sure everything was ok so its greatthat this new guy and his team is very much making sure of everything and im grateful for that. Its not doing my nerves much good tho

Thanks for your reply ️️

xx

Oh I'm with you! I'd much rather have someone take their time and double check than just write things off as nothing without checking it out. However the waits involved, can be insane! And of course, in that time, your head can do all manner of things to you and come up with all sorts of scenarios!

Usually....... usually.... lol..... the MDT meet once a week. However, it's holiday period so if one of them is off and they need their opinion, then they'll need to wait until they are back. By which point another might be off. Then once they're all there, they've got lots to catch up on, so everyone will be dealt with in order of urgency and then order of date.

So I'd give them a max of a month, then I'd be calling the secretary to nicely chase and ask what's happening and what the timeline is looking like.

But hopefully it won't take that long!

Lass

xx

yes. thankfully my new consultant and the lady. he sent me to for the scan are great so I finally feel in good hands with them [which I didn't before ]

Good idea. Ill give it a month or so and then chase up nicely if I don't hear anything.

Thanks Lass ️️ xx