So impressed with nhs but nervous about op

FormerMember
FormerMember
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Hi

I'm new to the forum but not to thyroid cancer.

25 years ago I had an op on “cysts or nodules" which meant a partial thyroidectomy. On the day I was due home the Dr came in and said “in most of these cases these turn out to be be benign, this is not one of those cases” he then walked out of the room leaving me and my mum to work out what he meant, cancer!! Thankfully I never needed any further treatment  but the way I was treated as a 22 year old was terrible.

Roll on 25 years later and imagine how terrified I was to see a lump back in my neck. I was dreading how I would be treated but I needn’t have worried! I was fast tracked and seen within 2 weeks and was so lucky to have diagnosis confirmed on the day, meeting the Macmillan nurse and having time to talk through what happens next. It is back and gone to lymph nodes on neck too, thankfully further scans confirm that it’s not gone any further.  

But now I'm having my op in Wednesday - total thyroidectomy and partial neck dissection, everything is a little more risky because of previous op, and I’m so nervous that some/all/any of the difficulties they have mentioned will happen.  I’m so worried about my voice, recovery time and  anything else that could happen!, I'm trying to keep busy today but I feel like I’m freaking myself out, thank goodness I’m back in wrk tomorrow! Am I normal, does everyone feel like this, or is it just because of what happened previously? Any comments would really help x 

  • It's easy to let a bad past experience make you lose some of your trust in the NHS and to make you more nervous about the upcoming op. The good news is that even though you've got cancer (again), it's taken 22 years to make itself obvious so it's hopefully a little lazy lump that won't have got too lively in there.

    I don't suppose much has changed about the process in those years - but hopefully, you'll get a more caring doctor this time around. It helps of course that you already know it's cancer and so do they. So none of that "oh, offhand, it's not benign. Oh is that the time? I must be off. Ta ra" which you got last time. 

    Main differences from your original hemi? You might be in a bit longer. Typically completion thyroidectomies are 2 days in hospital if your calcium levels give no cause for concern. They can mean a longer stay if the calcium is off-whack or if your neck dissection (I really wish they had a new name for that - it sounds like doing frogs and hearts in school biology) is a bit more complex. 

    You'll get thyroxine after the completion - you might even be on it already if your half thyroid needed a bit of help over the years. Just be aware that's to be taken with cold water 30-60 minutes before food or hot drinks. Hospitals have a habit of forgetting to tell you that. And if you do need calcium, give it 4 hours after thyroxine before you take it. There are a bunch of other things that don't mix well but if you have any of those, you can tell us and somebody will know if it's an issue. 

    And at any point, you can come and ask anything. We don't know everything but we do know a lot. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • FormerMember
    FormerMember in reply to barbaral

    Thank you so much, I’ve been told I’m likely to be in 4 days, so guess it is a little tricky but you’re right dissection sounds dreadful, as if we’re not nervous enough already!! 

    I’ve  been taking thyroxine since my last op, but you’re right no one ever says when to take it, luckily I think I’ve managed to take it with sufficient gaps from food and hot drinks. . I’ve been on 150mcg pretty much the whole time (except when pregnant with my 3rd son when they doubled the dose) but my levels had  changed when I went to Drs 6 weeks ago   so am currently alternating between 150 & 125, but realise that might change after the op. Thanks for the tip about timings with the calcium meds too, I don’t take anything else so if I need to take it I should be ok. 

    Thanks for the chat, I know I’m in good hands, I just wish I could feel a bit less nervous, it doesn’t help that my  youngest is starting his GCSEs this week so trying to appear calm for him!  Off now to clean the house, work my nerves on that!!