U3 Thyroid nodule with thy1 needle biopsy result

FormerMember
FormerMember
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Hi

I feel a bit silly posting on here because I have not had any diagnosis of cancer up to yet.


I had a neck scan for a cyst at the back of my head and neck pain and do have a little trouble swallowing but nothing major. They found a thyroid nodule by incident.

it's 11mm x 12 mm

It's classed as a u3 apparently and is solid with more of a blood flow than they would like to see.

Anyway I was sent for a fna biopsy and my results are thy1 indertminate. I was sent then urgent to ent and yesterday I was told that they want to do another fna next week and then go back to ent the week after. 

I asked if it comes back the same what next and he says surgery to remove half the lobe.

I don't really want surgery naturally and asked what percent turn out to be cancerous. He said 20% chance which is 80% chance of not. 

My thyroid tsh test is normal.

Has anyone with a u3 nodule been in this boat and does anyone know if the nhs do the afirma test yet?  I've had extensive surgery a few years ago for a cholesteatoma which had grown everywhere and although not cancer it had done a lot of damage. 

Is it definitely true that with half the lobe you don't need any medication? My function test is fine atm. 


Thanks to any replies and I realise I have not been diagnosed and 20% chance is low.

  • FormerMember
    FormerMember in reply to FormerMember

    Well I am a little confused again tbh. I have today received my hospital appointment to go back to ent next Thursday which is the two weeks I was told but haven't had my fna biopsy appointment.

     I then rang the ultrasound department and they told me that there is at least a 12 week wait even for URGENT appointments. She then went off the phone and came back to say about 6 weeks minimum. She said they are really struggling. Now I'm not any more important than anyone on the waiting list but I think 12 weeks is a ridiculous time to wait if they "really" thought it was serious. My ent consultant wanted it back for next Thursday which was to be done this week. 



  • FormerMember
    FormerMember in reply to FormerMember

    Andy rose. Thanks for your input and u4 seems to always be that they take half the thyroid but I think a repeat biopsy and maybe watching and waiting is ok for a u3 if the biopsy comes back the same again. I'm sorry what you are going through atm and hope to god yours comes back all clear. 


  • FormerMember
    FormerMember in reply to FormerMember

    Had a call today and my 2nd fna biopsy is tomorrow. I am glad because I have decided that I'd my result is thy1 or thy3 I am going to ask for watch and wait approach. I have been studying about small pap cancers (most common) and according to lots of doctors and other countries research it seems this approach can be adopted and lots would never cause a patient any problems. My nodule is only just a millimeter or so over 1cm and in some countries they don't even biopsy a u3 under 1.5cm. In fact there was something I reading about reclassification of some small thyroid cancers and overdiagnosis.  

    I just hope and pray tomorrow gives me a thy2 result and they maybe check again in a year or so. I have had extensive surgery from a benign ear tumour a few years ago. I really don't want to have any for a "maybe" cancer if there is a choice. I was not offered that choice but maybe that was because I had already said I want to "know" and the only way of actually knowing is to take half the thyroid. 


    Thankyou to all you kind people who replied to me. I will post back my result. 


    Take care.

    x

  • My fingers are crossed for you! Best of luck For tomorrow!!


    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, I just want to wish you well and I hope that your biopsy went OK.

    I posted on here a few weeks ago worried about the whole process and wondering when I would get my appointment through for the ultrasound guided FNA. Well three months after my ultrasound raised suspicions and lots of calls to GP/GPs secretary and one email, I finally asked and nicely vented my frustration to my daughters GP  (it was her appointment) and the lovely lady looked at my notes and said no referrals had been made for two  months and that she would push for the appointment. 


    Appointment finally arrived yesterday for a couple of weeks time, but reading posts on here I find that I actually don't  know very much about my nodule at all....only that it needs the FNA. Should I know what it is classed as so far from the ultrasound or can I ask that at my appointment?


    Apologies for adding on to your post thytoidnoduleshelp. I hope you have a good outcome.


    Thank you for  any help anybody can offer.


  • Hi Jessy

    Well done for being so pushy but try not to worry about what your nodule is or how it should be classified. Most of us here had no idea at all about ultrasound and FNA ratings and sometimes it's not a bad thing to live on in ignorance. If you find out, great, go for it, but if not, don't lose sleep over not knowing.

    Ultimately, they can scan and stab and analyse and still loads of us end up having surgery because they just don't know. The numbers can give a false sense of more information that the doctors really have.

    Good luck for your FNA. Horrible test - sorry to say it - but it's important to get it done.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • FormerMember
    FormerMember in reply to barbaral

    Hi jessy

    So sorry you are too going through this dilemma.


    My biopsy went ok today. They again took 2 needles full and he showed me mine after on the screen. It's the same size I think and he said to just listen to my consultant. I then told him I had read lots of controversy about thyroid nodules etc and he agreed and said that I should definitely let my surgeon/consultant know exactly my thoughts. I did ask what my classification was and was told weeks ago by my doctor and she also mentioned the mdt so I had doubts as to why a u3 thy1 would need an mdt. 

    Anyway I have only a week to wait now and hopefully it will be a thy2 result which I do know my consultant said would be the end of it all.ifs it a thy1 or thy3 onwards then to "know" for sure it would be surgery to remove half the thyroid. He never mentioned watch and wait but I will sure mention it to him. Maybe he didn't because I had concerns when my doctor told me going back to march when my scan results were back and I couldn't understand after the biopsy why they still didn't know one way or another. I probably shot myself in the foot there by saying I wanted to know. 

    I would certainly ask as much as you can about your nodule. I know the size of mine, it's solid, the ultrasound rating being the u3 and they say there is more of a blood flow than they would like to see. I am curious, it's in my nature. Perhaps I know too much but I cannot help myself. I'm not sure now that I want to know for definite. I want to ask if it's ok to watch and wait maybe  If it does come back the same as before. Like I say I pray for a thy2.

    I wish you well on your fna and hopefully yours will be good news. 

    I will tell you my time line.

    I had a scan for other reasons on 6th March. My scan was with the doctor the day after. I received a letter to see the doctor non urgent the day after that. I saw her 2 weeks after that. I then waited 3 weeks for the fna it was back within a week and then I was told I being referred urgent. I saw the consultant a week later and then my fna this week and back to see him a week later. It's been going on for weeks. I think this 2nd biopsy was done quicker because I contacted pals because I didn't want to cancel my consultant appointment but had been told 3 months wait for another fna. I would have waited from 6th March to end of august then. 



  • FormerMember
    FormerMember in reply to FormerMember

    And forgot to say jessy. Ive had two fna biopsies done. I used emla cream both times. It's a numbing cream and I applied it about 2 hours before taking it off at the hospital. Both biopsies have been no more pain than having a canula in. In fact all I felt was slight pressure. They certainly should supply us with this or advise us of it. I would 100% recommend it. 

    Good luck


    X

  • Just a note. Don't take or apply anything without telling your doctor about it or asking if you should first. The emla is a form of local anaesthetic, and if you're given an injection of local anaesthetic as well then there could be overdose issues.

    So please, just be safe and make sure the docs know if you choose to medicate yourself with anything. 


    Lass

    Xx



    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • FormerMember
    FormerMember in reply to Lass

    Hi lass

    I did ring to ask about local anaesthetic before and was told the nhs don't do it or rarely do it. I did ask about emla and was told whatever makes it more comfortable. Both times they have not minded at two different hospitals. I did see that it was trialed but they said it didn't take pain away but I know it definitely worked for me. 


    They are now trying to get local anaesthetic for fna biopsy of thyroids I read last night. From what I read it actually hurts more than the biopsy itself they had said. 


    And yes, of course check with the hospital first as I did but I was told they don't use anything. 


    X