Thy3A result - wait on follow up scan and FNA

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I went to my GP in March with a lump on my neck.  She referred me to ENT and I saw a consultant 2 weeks later.  I then had a scan and FNA  on 9 April. 

I got a phone call from the Consultant to explain the result of the scan was U3 and the  FNA results would mean that she was recommending a partial thyroidectomy.  I queried was that a definite, what was the timescale etc.  she said that was almost certainly the recommended next step, that it would be discussed at at thyroid multi-disciplinary meeting and she was referring me to a Neck Surgeon. 

i had appointment with a surgeon on 30 April who said I would not be having surgery but would have a 3 month review with an appointment no later than end of July.  When I said that I understood that surgery would be happening he was very dismissive - thyroid lumps are very common etc etc and my result didn’t even warrant a discussion at multi-disciplinary meeting.  

I then revived a letter sent by Surgeon to GP confirming the U3 and Thy3A result but have heard nothing further.

I was then told today by the appointments line that they are currently 6-7 month delay on appointments so people who should have been seen in January for three months review are being seen in July. 

On that basis I might not get my follow up scan until February, 12 months after first discovering the lump.

Obviously I am concerned, I have tried phoning the Surgeon’s Secretary but it goes to a recorded message and tells me for follow appointments to contact the Appointments line.  

Has anyone else waited this long with a Thy3A result and if has anyone decided to go privately for follow up scan and FNA, if you can you could give me an idea  of cost as I have no private health insurance.

  • Hello  

    I am Brian one of the Community Champions here on the Online Community. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer however by me replying your post will be "Bumped up" to the top of the page and I hope seen and answered by other members of the group.

    I think you should at least be contacting PALS (Patient Advice and Liaison Service) at your hospital to see if they can help. Here's a link you may also find of help:

    Raising-your-voice-toolkit.

    I do hope you can make some progress.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi,

    Im.new to this forum and my advice is to.pester your GP and not leave it. 

    I was diagnosed with a U4 nodule on my left side Ty3 indeterminate in March this year. Had high calcuim for a couple of years previously..Also they found a parathroid odema on right side. I had surgery for both june this year and just found out it was thryroud cancer..all the while the endo doctor and surgeon said most are  u4 ty3 are nothing to worry about..im.my case its a shock to now find out ive been living with thyroid cancer. 

    1. Keep pushing the doctors.