Hi,
Just been informed that I have now early signs in my lungs. Undifferentiated thyroid cancer metastasised following thyroidectomy. RT and RIA - Lenvatinib suggested ongoing treatment.
Keen to hear how peeps in similar situations are doing esp on Lenvatinib. Tolerance/side effects/success rate/quality of life on meds etc.....
Also I'm currently being treated in Surrey - wondering whether a referral to the Marsden would be advised.....???
Thanks in advance :-)
G
Hi Gelli, sorry to read your update regarding metastasis in lungs. It might be worth doing a wider search across the other forums too for Lenvatinib and see if anything helpful comes up.
I think if it were me then yes I might well pursue a referral to a centre of excellence like the Marsden. Even if it was just to give peace of mind that you were doing all you could, especially as your case isn't straightforward.
I'll tag Tomo if he doesn't mind as I believe when he last posted he mentioned lung mets, although I don't think he's overly active on the forum. Might be worth having a look at his profile and posts to see if anything would help. You could perhaps message him directly then too.
Hopefully you'll get some more replies soon with more relevant advice.
Let us know how you get on. All the best. X
Medullary Thyroid cancer dx May 2023
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