Hello all, I was only diagnosed yesterday with Follicular Thyroid Cancer which was accidentally found under a nasal scan. Since then it's been a whirlwind of tests, needles and resulted in having a left side thyroid removal. I had 5 biopsies, all along they have said, chances are it's not cancer, decided to remove half my thyroid and send off for testing as the biopsies came back negative but they were obviously were still unsure. Glad I agreed to the removal, having found out yesterday, that it was cancer.
I knew it was going to be cancer of some sort as I had lots of symptoms but as it's been such a whirlwind, in a few weeks, I haven't had time to sit down and really ask any questions. They said they caught it early and sure there is no more, think it was all caught in the one 3.2cm cyst they removed. They said they want to just monitor me over the next few years but as I had such obvious symptoms (which my Dr ignored for 4 years) I don't know how I feel about that. In the same breath, I don't know if I should be asking for further investigations into my lungs or other spread areas, should I insist on RAI, am I better asking to have whole thyroid removed. I do have other cysts on other half but been told they are fine as just fluid filled.
Any advice would be greatly received.
Hi LJWM I am pleased to see that you are now in the correct group for your cancer type. It can be very confusing until you get clear information, I am sure that you will get great support in the group.
