Newly diagnosed Testicular Cancer

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Hi,  I was diagnosed with Testicular Cancer which was a mild surprise the doctor had been treating the cricket ball stuck in my trousers for infection.  The big shock was being told it was probably a secondary cancer.  The other surprise was to realise how little I new about cancer despite my mother dying from it and a large number of friends going through everything from discovery to remission.  I'm avoiding looking at Google, the few times I weakened it was confusing, misleading or terrifying and some times all 3.

I had my staging CT Scan which I found mildly frightening because I'm profoundly claustrophobic but it was quick and the radiographers were fantastic.  Sadly it took 36 hours to feel 'normal' (symptoms muzzy head and slight dizziness). I didn't feel the you've wet yourself sensation fortunately.  So waiting with a little interest in the results - I'm not even sure when and how I will hear them.

Apparently my Testicular Cancer Tumour Markers are normal (I think that implies its still within the testicle.

Next stage is to have one Orchid (!) removed in 5 days - should improve my hayfever(?). To be honest that's the least worrying part of the process God gave me a spare all though that looked a bit sparkly in the ultrasound -a Glitterball.

The surgeon has speculated I have Lymphoma and will need Chemo and Radiotherapy so I think I'm about to become a frequent user of your site which has been very measured and informative. Thank you.

Despite the suggestion I will avoid sharing a photo.

PS Best T Shirt Idea so far... "The Others in the Albert Hall"

  • Hello Astigabay

    Welcome to the Online Community and the testicular cancer group.

    I noticed that you had not yet had a reply so am responding in the hope it will bump your post so someone who has faced a similar diagnosis will see it and respond.

    I am sorry to hear of your diagnosis of a testicular cancer, possibly a secondary one. It must be worrying to be told that it may be lymphoma and that you may need chemo and radiotherapy. 

    I wish you well with your surgery and hope that it brings some more clarification. At the moment you are still dealing with uncertainty around it all and that can be tough.

    There is some information here that may be of help.

    Testicular cancer booklet | Macmillan Cancer Support

    To be told that you may need chemo and radiotherapy is scary. I had both and although it was tough at times, it was doable. 

    If you feel talking things through would help, then please do consider giving the Support Line a call. The details are below. 

    Hopefully someone who has had the same surgery will now see your post and offer support.

    In the meantime if there is anything you need, then please do ask.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hello Astigabay hope all going well for you , recently diagnosed here Sept 2024 , had op to remove RHS and awaiting MDT Meeting next week for treatment plan, 

    Am glad you said about the CT scanners , I did explain to nurse have had the claustrophobic feeling and they were great I had the PET CT Scan so will be interetsing to see what results say !! 

  • Hi Malarky,  I'm glad my notes have been helpful.  Immediately prior to the op I was diagnosed with Testicular Cancer, rare for a 63 year old.  After the 5 week long histology study into the removed tumours/testicle they concluded that I had a rare form of Lymphoma,  Testicular Diffuse Large B-Cell Lymphoma (DLBCL) which in my case is a highly aggressive form of Non-Hodkins Lymphoma.  So at the last minute I had to change from a Consultant Testicular Cancer Oncologist to a brilliant Consultant Haematological Oncologist and follow a different treatment plan.  Im now having both IV & IT (Intrathecal - Spinal Chemo) which is as much fun as you can imagine. I wish you well and if you also move onto the Lymphoma side of things no doubt we will Chat on the Lymphoma Action Secure Facebook Group.  I wish you all the best for the future and don't let the waiting grind you down, get your fitness back as quickly as you can it will help subsequent treatment.  - Charles

  • Many Thanks Charles for you kind words, 63 yr old here as well, and notes very helpful. Wishing You All The Very Best with you IV & IT Chemo, sounds like your having the best of everything albeit not the workout you would want  , always  good when you find a great team to work with you - Onwards & Upwards !!