I was diagnosed with Stage 3 testicular Cancer in 2023. I had 9 weeks BEP chemotherapy. In December 2023, I had RPLND to remove lymph nodes that 13mm in size, only 3mm above the threshold for surgery. I went against my gut instinct and went ahead with surgery. The results came back to show the nodes were necrotic. For the sake of 3mm I went through major surgery and was in ICU for 4 nights.
I want to reach out to anyone who has had RPLND - do you have any side effects from the operation. 18 months on, I wake up every morning due to pain radiating from my lower back - where the nodes were dissected. I have spoken to my GP and Oncologist, and I have had CT scan/x ray - everything has come back normal.
Post RPLND - has anyone experienced anything similar? Does it have anything to do with nodes draining during the night? Is this pain something I have to live with?
I look forward to hearing from you.
Many thanks
