Testicular Pain in Survivor

Hi seanywillz

I was in the exact same circumstances op in april 2018 and the exact same symptoms the remainer will ache for a good while now and again as it's taking up the slack I'm nearly 2 years clear but any aches and pain plays on your mind.

Remember your well looked after on surveillance they will normally find anything before you do and it does get easier to deal with the mind is a powerful thing and plays tricks on you in times of worry.

All the best 

Jumbo 

Hi,

I was very active on this forum a few years ago. I lost my right testicle through a misdiagnosis of cancer in 2014 and developed pain in my surviving one shortly after. This was dismissed as epididymitis then when the antibiotics didn’t work I was told it was chronic epididymitis and pretty much left on my own after that. After 3 years of constant pain, depression and coming very close to suicide whilst coming to terms with losing my ball for nothing!... oh and spending around £15k on seeing private doctors trying to find answers my GP suggested I went gluten free, as the pain wasn’t always in my testicle, it was in my groin as well and radiated down there. Since going gluten and dairy free my symptoms have improved by about 75% but I still get pain and swelling in my epididymis when having a bowel movement. In January I’m seeing a pain specialist who is going to hopefully inject my inguinal nerve as they think that might be causing my problem as well. If all else fails I would suggest trying a gluten free diet but hopefully your pain will clear up on its own or with antibiotics. This is not an uncommon problem and effects many men so remember you’re not alone and it should usually resolve itself.

thanks,

Paul

Hi Paul,

I just read your post and can’t believe you was misdiagnosed with cancer when is wasn’t. Reason I’ve reached out is I had operation few weeks ago, and I was convinced it was something out, I’ll guess I found out soon if was tumor or not. There was a mass showing on my ultra sound, but wanted to ask you, what signs did you have for them to presume cancer? Was the testicle swollen, enlarged etc.. what did it show on ultrasound ? I didn’t think these things happened but, I always thought they would have to be 100 percent before having an orchiectomy. Sorry to hear that .

conners 

Hi Paul, 

I had my testicular tumour misdiagnosed as epididymis repeatedly for 4 months by a GP. A second GP didn’t even examine me, referred me and op within 2 weeks. I’m sorry it happened to you though, medical negligence is unfortunate.

Hey I had exactly the same diagnosed with epididimitus and my wife made me go back to a different gp and straight for referral to urology and boom after ultrasound told cancer hope your all good I'm nearly 2 years clear now