Hi , my name is Clive living in Portugal My story started on 11/11/2024 with a large lump removed from under armpit, eventually getting the result after Xmas witha few question marks from biopsy, but generally a strong possibility of T cell angioimmunoblastic...
Hi - My wife got dignosed with Nkt Cell Lymphoma in 2023 - she had chemo radiation chemo (gelox). She then got a clear PET scan. Unfortunately she relapsed in October Nkt Cell Lymphoma has spread to skin. She is currently getting chemo GPD regium plan...
Hi partner diagnosed beginning July after lump appeared on lip during a nasty bout of covid. See profile for details Constantly told by various drs its a really rare type and probably end up seeing specialist! ct scan & bloods done Told this week by...
Hi there we just found out on Thursday that my partner (we are both 30) has been diagnosed with cutaneous T cell lymphoma. We are still very early into this journey and don’t know much about what’s happening or going to happen. We are both an absolute...
Hello. My husband is going through tests at the moment as MF is suspected. His dermatologist sent him for an X Ray of lungs and chest. Funny enough my husband has had a weird annoying cough for the past year which he always has put it down to indigestion...
Hello everyone. I am very grateful to find this space especially in moments like this where you feel incredibly lost and confused. My husband ( he’s only 42) developed a few marks on his left leg in February 2023 which were red a first, then turned...
Hi. I was diagnosed with Peripheral T cell NHL at Christmas. I have been in a state of shock, denial and avoidance. I am now trying to come to terms and hope this group might be able to answer some questions and share some experiences.
My child has T cell lymphoma, diagnosis around 8 weeks ago, I am a senior sister in PICU. I don’t feel I want support from parents in the usual way, I want to be back at work at some point so professional boundaries are a worry for me. what groups could...
As 58 year old male I was given the news that my lymphoma is AITL seem like it’s quite rare I start chemotherapy tomorrow the CHOP there going to harvest some stem cells at some point on treatment any pointers on anything that helps get through the chemotherapy...
Hello my symptoms started in march 23 last year. I had a rash from my neck down to my ankles. It was very itchy. My legs swelled and I had high temperature with night sweats. My hair was falling out on my hair brush. My GP didn't know what was wrong....
