Hi all, (apologies - long post) I have a 25 yr old son with a recent MF diagnosis. he has had severe atopic eczema(80-90% surface) all his life ( since birth) and has been prescribed with betnovate, various steroids etc. Bad flare ups caused him to...
Hello. My partner was diagnosed with NH HG T CELL three weeks ago and yesterday the oncologist confirmed it to be Angioimmunoblastic TCell type. After reading so much info it seems to be a rare one. If we weren't absolutely devastated and terrified...
In 2018 I was diagnosed with Psoriasis. After a number of trials on steroid drugs I moved on to biologics, Tremfya, Skyrizi & Taltz. During this time, nothing was able to clear the scaling on my hands & feet. In the spring of 2022, my white blood count...
Hello all, Lovely to see so many friendly messages here. Hoping I can find a bit of community with those who have also been affected by this. I have recently been diagnosed with stage 1b CTCL (Mycosis Fungoides) and am about to start UVB therapy....
Hi! I've just joined and I don't actually know where to turn to. I have just got home from an appointment with the consultant for my dad. He has been diagnosed with stage 4a angioimmunoblastic t-cell lymphoma (I apologise if the spelling is off) ...
Hello,my husband has just been diagnosed with T cell lymphoma,after a large abscess 10inches was removed from his small intestine.he has an appointment next Thursday to see the specialist.I am worried s ck ,I don't know what to do,or what's involved ...
Hi all, My 33 year old son has just been diagnosed with Cutaneous T-cell Lymphoma. Reading about it, his is a fairly typical story, he has had eczema/psoriasis since age 15 although it didn’t quite fit the diagnosis. He had extensive skin testing about...
Hi All, Some may know me from the other group. Recently Diagnosed with Mycosis Fungoides. I have a issue of itching and really extreme painful skin. It's not everyday but today is a bad face day (it's mainly my face) Anyone else have the same...
Hi I joined this group today as yesterday I just broke. My husband went into hospital on Dec 6th was diagnosed on the 10th and they started his chemotherapy (CHOP 14) 5 hours later. He has been in hospital since then as there have been numerous peripheral...
Hi, my son has been diagnosed with possible T Cell lymphoma. It has been a long journey for 6 years. He first was seen by hematology for enlarged lymph nodes. He had several very large lymph nodes taken from the groin and under arm . He has small lymph...
