I dont know where to start!

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Good Morning,

I am new to this group. I am also new to cancer. I been going thru a process of biopsy's, endoscopy's since Dec 25. I had an ESD June 24 to remove a tumour in my stomach. I am now waiting for a pathologist decision on whether or not I am able to keep my stomach. I am struggling with all of this.

  • Welcome to our group! This is such a difficult time for you as you wait for the medical team to decide on your treatment. There are many people who live a good life without a stomach! I had a partial gastrectomy seven years ago and eat and drink much as before! It takes time to adjust but there is a lot of help and support from this group.  
    I found the OPA was a good place to start 

    https://opa.org.uk/what-we-offer/

    This helped me have some control which I found helpful.  I wrote a Blog of my treatment which you can read if you click on my profile.

    Do use this group as it helps to realise that you are not alone! 

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi, sorry to hear about your diagnosis…I also understand your emotions at the moment… it is like they a rollercoaster ride… I was new to cancer too in 2021. I had my stomach removed in April 2022 and I’ve had to adjust my food intake ( smaller portions) but apart from that it’s no different to what I was before. Your medical team will support you with everything… please ask me any questions any time. 
    look after yourself 

    Michele 

  • Thank you so much for replying. I do feel alone, unable to speak to others about this and so very overwhelmed. The fear of the unknown is very frightening. 

    I am so sorry you have had such a difficult time. I am equally so happy you are now doing well and living happily.

    I will follow the link provided and find your blog.

    Thank you again x

  • Hello,

    Thank you for replying.

    I am still waiting for the expert pathologist to provide the final decision. 

    The wait is horrible, everything seems to be a wait!!

    I am so glad that you are now well x You give me hope x

    Thank you x

  • Just to give you a bit more hope, my husband was 79 when he had his stomach removed he’s now 83 and apart from smaller meals he’s doing everything he did before we go on holidays abroad, life now seems as it was before apart from a few years older. I think the waiting is the worse part. Good luck with the results and hope you don’t have too long to wait xxx

    Sue Xx
  • Are you still undergoing treatment?

  • No my treatment ended after my last chemo in July 2022. I just have annual video calls with my consultant/surgeon. When I had my stomach was removed I had a lot of biopsies taken and they all came back negative so my treatment finished… it was scary to think my comfort blanket had gone but they are there if I ever need help. 

  • I am truly so glad you are well now. You have been thru so much. You deserve peace and security now xx

    I hope you dont mind if I keep in touch with you?

  • I am so pleased your husband has made such a wonderful recovery. It does give me hope and solace knowing I can still have a quality life. 

    It is fear of not knowing that is taking control, I am up and down all the time! It is so draining.

    Thank you so much, and wishing you both all the best x