Hello
I have been diagnosed with stomach cancer- “ tumour is a poorly differentiated adenocarcinoma with signet ring cell”
I have been told to start chemo - FLOT 4 cycles then surgery and again 4 cycles of chemotherapy.
I was really shocked and how my world is going to change, chemotherapy shows so many side effects which make me question what’s the point?
Has anyone refused chemotherapy? Do you get any vitamins to help with this journey?
I am going through changes at work and don’t want to stop working. I am not sure how is going to be and if I will be able to cope? Really worrying for myself and my family.
Hi, I had the same diagnosis with stage 4… yes chemo was hard especially the first 4 after surgery not as bad… your oncologist can adjust the FLOT to suit and extra anti sickness tablets or different ones… also can increase the steroids longer after chemo by a few days which helped significantly… I didn’t have vitamins or asked to take any… I didn’t refuse chemo even though I didn’t like it, I just wanted to get it over and done with…
I do hope you improve and try and be positive… I’ve been 3 years this year since I finished with it…
Take care
Michele
I’m sorry to hear about your diagnosis, you will be in a state of shock. The treatment you have been offered is the Gold standard for stomach cancer which is treatable by surgery.
I had signet ring carcinoma which is rare but aggressive so chemo then surgery followed by more chemo is the best option for ensuring there is no recurrence.
I had a different chemo then a partial gastrectomy six years ago. I now live a normal life.. something I couldn’t imagine when I was diagnosed.
Do use this group for support, there are lovely people who will share their experiences.
I wrote a Blog of my treatment which you can read if you click on my name.
Good luck!
Jac
Hi and thank you for your response. I am year down rhe line, with BRACA2stomach cancer which cannot be removed. I've had 6 rounds of chemo combined with 6 rounds of Immunology and St the end of that the cancer had shrunk by 30%. However when I moved to 6 rounds of Immunology was a stand alone treatment the canceefre again. I should say since about 6 months into all of this I had liver mets, which cannot be cured. So I stopped my treatment (Immunology) after treatment 5. I was always stage 4, and so now I am under the care of a local hospice, which means when I need a bed and their care it will be available for me. I wish you all the luck in the world. Take care xxx
Please don’t make rash decisions. My husband wanted to refuse the treatment when it was first explained to him, he couldn’t imagine it’s possible to live without a stomach. Luckily the cancer nurse convinced him not to make the decision right there and then, to read some information first. There is a brilliant charity: https://www.ooso.org.uk, he had a call with some post-treatment people and it really helped.
If they talk about “curative path” with you, it’s good - you can make it through the treatment and there is a reasonable quality of life on the other side.
Hi Chloe
I am sorry that you had to go through this and hope you have finished the treatment.
My scab shows T2N0M0. I will meet with the doctors tomorrow to finalise the treatment.
I am trying to educate myself and kind of be prepared (as much as possible)
All the people sharing their stories in this forum have been helpful. :)
best wishes
Bruna
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