New here !!
My husband has been diagnosed with L Plastica the only symptom was sweating . 4 months on due to delays and cancelled tests the scans all look like it LP they tell us and it’s terminal .however two separate sets biopsies came back negative which they have no explanation for . He’s unable to start any treatment without biopsies but they keep telling us he’s definitely got it . In the past 4 months he’s not deteriorated at all as expected with this cancer . He was also diagnosed with HPLORI
Has anyone else had these problems with biopsies, two sets now second set extremely deep in to stomach wall and negative .
