I had urgent surgery to remove a ruptured 14cm GIST from my small intestine 16 years ago, followed by a hernia mesh repair as the wound site did not knit together as it should. I had 3 years of Glivec, with alternate CT and MRI scans for 10 years. Discharged three years ago and have been healthy but I have started getting shocking pain in my lower abdomen which I can tell is in connection with my digestive system. It comes and goes but is very severe when it happens, usually after eating. It feels like a pulling sensation - does anyone experience anything similar and what did you do? Many thanks.
Hi KayW and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies then I'd advise that you contact your treatment team or GP as soon as possible to get checked out.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
