I’m a little lost in where to go so am hoping for some reassurance.
My husband had surgery last Wednesday for Stage 3 GOJ cancer followings four rounds of FLOT. His operation lasted 10 hours, much longer than the guidance we received. On waking up from the anaesthetic he was delirious and trying to pull out his nasal tubes and get out of bed to the point where he had to be restrained and sedated.
During the night he did manage to pull the tubes out, vomited and aspirated some of it. He had to be sedated to a deeper degree as he was classed as being a danger to himself. He also has a chest infection which the doctors think he had when he went for surgery.
It’s now Sunday and there has been no change with his infection and he will continue to be sedated until it has gone and the vomit from his lungs has been cleared. There has been mention of temporary (and possible) permanent brain damage and he will have a CT scan for this should he be delirious when they eventually wake him again.
In the meantime it’s a long, worrying wait where I can only sit by his bedside whilst he is sedated and incubated
Has anyone any experience of this and can provide me with some reassurance?
Thank you
Hi, so sorry to hear what you are going through and your husband… I didn’t experience anything like this, only thing was the strong pain killers made me hallucinate for a couple of days. I did get a chest infection two days after my surgery and had to go back to HDU and was given antibiotics and was there for 5 days. I did pull on my nasal feeding tube in my sleep, so I started to have liquid broth.
I do hope all goes well for your husband. Sending hugs.
Take care.
Michele
Thank you Michele, at the moment I really don’t know what to think, it’s a waiting game. I hope your recovery continues to go well.
I am so sorry to hear about your husband. This must be a nightmare for you. He is being well cared for and hopefully the sedation will allow his body to fight the infection. He’s been very unlucky to have such a setback. MacMillan do provide support so it may be worth giving them a call, as this must be emotionally and physically exhausting. Hope you get some positive news! Take care x
Jac
Thank you Jac.
The ITU team are amazing and give such love and care to both of us. It’s the nights that are the worst as I expect the phone to ring in the middle of the night.
I do my best to hold it all together at the hospital but the rest of the time I am alone.
So hard for you. My husband had a stroke while we were on holiday abroad last year and like you I found night time very difficult. Have you tried using mindfulness techniques? I used the Headspace app when I was going through treatment and now use the Calm app to help me when I can’t sleep or I am anxious. I still use the techniques and find they help me.
Hope today brings some positive news ! X
Jac
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