Awaiting Total Gastrectomy with trepidation

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Scheduled for 10 July No idea what to take to hospital, any advice welcome, I’ve never stayed in hospital!

  • Welcome to our group! I took a couple of short nightdresses as I would rather not wear the hospital gowns. A phone charger, phone and iPad. I downloaded Headspace and listened to it using earbuds. It helped me stay calm and cope with anxiety 

    The main thing was to get information on the recovery and starting drinking and eating. The medical team should ensure that you follow a pathway but I found it helpful to understand it myself.  Once you can eat it’s very important to eat tiny amounts and build it up. 
    If you can get as fit physically and mentally as you can! I walked a lot prior to surgery.  Your body will undergo a significant impact so being as fit as possible will help! 

    Good luck! 

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Thank you Jacquiw10 very helpful advice. I’m trying to get built up with food and exercise - Heat not helping! I’ve also ordered the art of eating without a stomach book best to be prepared! I’m very grateful for this site and hearing other’s experiences -very reassuring that life can be good again. 

  • That’s good! I found that book very helpful. It’s a lot of trial and error at first!

    I found the surgery much easier than chemo! I was absolutely terrified but very well looked after by the medical team. I was on an Enhanced Recovery Pathway which helped. I walked out of HDU after 5 days.. there were no porters!! 
    And went home the next day! 
    I was back at work on a phased return after six weeks! I was lucky there were no complications after surgery. 
    Fingers crossed for you! X

    Jac

    Life is what happens when you are making other plans!