Hello

I have seen only a few here who has the same type of stomach cancer as we do.. but I have not encountered anyone yet that had undergone surgery. Hopefully we can be one of the first. 
Good luck in your treatment. 

So my journey continues 

Update after my scan this week Dec 2023

The results from the scan show that the  CAPOX and Herceptin treatment is working . The thickening of my stomach lining is thinning . TBH I was prepared for 2 options: 

Option 1 1st the treatment  is not working , 

Option 2  showing stability 

I really wasn't prepared for a 3rd Option that the thickening was thinning . 

So based on the results I am continuing the treatment and will then get a further scan in March once the chemo cycle .

So the journey down my river continues and I am now making a new bucket list for the next 3 month

Take care everyone and all the best

Christine

How are things going for you now? 

My family member completed reduced dose of chemo folfax over the summer, cancer has not spread but surgeon consultant today informed her she is too frail for surgery   linitis plastica she has no pain but 2 teaspoons of dinner and she is full.  So difficult to watch this. 

I am doing well .completed 5 cycles of capox in February and since then I have continued with a targeted therapy herceptin.  I get 3 monthly scans to see if things remain stable .  My cancer has always been inoperable so no chance of removing I am taking each day as a blessing 

Sending love to you and your family member

Hello quirky lady , reading your post has given me some hope. My dad has just been diagnosed with the same inoperable linitus plastica. He is starting pallative chemo tomorrow x

Best of luck.

We are back to surgeon and oncologist next week. 

Wishing your dad the best of luck with chemo.  We got Palliative care involved to treat the symptoms and would highly recommend.  

Hello How are you getting on post the surgery?  

We are back to meet surgeon and oncologist next week. 

My mam is building herself up post chemotherapy x4 and is really hoping she will be fit enough for surgery in next couple of weeks, she was told she was too frail post chemo last review but is determined to get stronger and is back out walking and taking extra supplements drinks.

Thank you so much. Best wishes to your mum x