I was diagnosed in October 22 with inoperable stomach cancer I did 5 rounds of Celtic (capon) chemo but was so very poorly all the time had lots of issues with my blood so finally gave up late January. During this period I had an MRI which showed some shrinkage but also some very small blood clots in the lungs. I was given a blood transfusion and started a course of blood thinning daily injections. Apart from tingling fingers and ties I’m feeling very well. My appetite has been restored. I do get very tired and find that walking any distance and standing too long is really tiring.
in mid March I had another MRI the results show a slight growth and spread within the stomach. Oncology have suggested a different chemo less invasive than the previous one. I’ve read the paperwork on Irinotrcan chemo and like all chemo cocktails it has it’s possible side effects but I have decided to go ahead and hope it buys me more time although after the previous chemo I am apprehensive.
Has anyone had this chemo it involves a day in the chemo chair for two 2 hour bags and then a smaller bag and then a pump fitted to pick line and home after 48 hours District nurses will come out to take the pump off and dress pick-line then nothing 11 days on day 15 you start again. Would like to hear of anyones experience on this chemo!
Dear Loony, my husband had the same treatment after CT scan showed a mass in the lung. The other name is FILFORI. He was going to have a course of 12 treatments. He had 9. The main side effect is fatigue and tiredness starting a couple of days after removing the pump and lasting around 3 days, so all in all about 1 week feeling tired and then gets better again before the next treatment 2 weeks after the last one. There is also some hair loss but not as bad as with his previous chemotherapy. He also had some nausea. We are now waiting for results of CT and PET scan. He has decided not to have further chemotherapy, months of fatigue has taken its toll. But everyone is different and some cope better. It is good that you got a district nurse coming to flush the pick line. We had endless visits to hospital. Wishing you all the best.
Thank you for this information. I am going into this reluctantly after the previous chemo made me feel so ill! However as you will know you have to take every opportunity offered and hope it works. I hope your husband gets good news and wish you both well.
This is excellent news and very pleased for you that treatment went well. My husband is feeling better since he decided to stop treatment. He had 9 treatments, he responded well but it took its toll. He was advised to have 3 further treatments which he declined. He was feeling very tired and fatigued all the time. It is hard and exhausting as life revolves around the chemotherapy. I wish you all the best, strength and patience and that you continue to do well.
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