Hello, my name is Mollie, married to Alex for 37 very very happy years. Alex was diagnosed with stomach cancer back in April/May 2022. Neither of us can handle this situation. We have both said to each other that the consultants were getting my Alex muddled up with someone else. We have always been so fit and healthy. We’ve led a good life. I think several times I have had to,pinch myself because we had been having such a good life.
Anyway, it’s happened and we are here trying to make some sense of it all. I have never had to try hard with Alex. We never argue, agree to disagree sometimes. I like what he wants to do and he the same with me. We love/loved gardening, cars, holidays and working hard. I think that’s what has upset us more than anything is that we have both worked full time the whole our working lives and to have this descend on us during what should have been our reward for working hard. Alex was always so well too. Never had a day off sick in his life. Now it all seems to have come at once.
I would be interested in hearing anyone else’s experiences and feelings.
Best regards M
Sorry to hear your experience.
I to had no symptoms and it was picked up in a blood test.
They told me it was inoperable and terminal.
It has been like being hit with a sledgehammer. It is just overwhelming.
I a. Shortly starting chemo by infusion. I'm not looking forward to it.
I send you love.
J
Hi Mollie, sorry to hear about your husband’s diagnosis. I was diagnosed with stage four signet ring at the age of 53 last November’21. It was a shock as I had no symptoms and was only found by having a routine endoscopy for ibs. It’s been a rollercoaster of emotions for my husband, sons and families. I’ve had 8 rounds of FLOT chemo and stomach removed. I am able to return to work in the new year.
Sending hugs… take care!
Michele
Hi J, I’m sorry to hear about your diagnosis. Hope chemo goes ok for you.
Take care.
Michele.
Hi Michelle.
The chemo they are putting me on is Folfiri.
Do you know if this is the same as Flot.
How did you get on with side effects?
Jenny
Hi, I just looked it up as I had not heard of it. FLOT is a cocktail of chemos and one was one that you are having in a pump to take home which you have attached for 24 hours. I don’t think you have the oxliplatin that I had which causes neuropathy.
Anyway each person reacts differently but most will have side effects of nausea and diarrhoea unfortunately, but you will be given medication to help combat it. When you go in on your first day take questions with you and the nurses will gladly answer them for you. You will go off food and drink for a wee while so advice you not to eat your favourite food at these times as you will go off them as I did…
Please take care.
( I’m here if you want to ask more questions)
Michele
It’s good to hear that you are able to return to work. Alex has had six sessions of chemo, first five went ok. He lost his appetite and was cold all the time. But after the sixth! WOW it was like him being hit be a train. He could not keep anything down, was sick all the time. In all our 37 years together I have never known him be physically sick. But this it was usually during the evening and he was just empty. He was just wretching the whole time. We landed up in the AOS unit. They said he was very dehydrated as he hadn’t been eating!! He had iv drips of salin and glucose. He did say that when the last round of chemo was being ‘fitted’, the nurse set it for four hours instead of two. Then realised and altered it. I wonder if this upset his system. Anyway his appetite has all but gone now. I am puréing everything for him just to try and build him up again. He used to eat everything and anything, now it’s difficult even to get him to have soup! Consultant appt in a weeks time. We wait to see what news that brings.
Best regards
Awww bless him… but well done to him having got this far… I too ended up in hospital for a couple of days after my 3rd one with the same being dehydrated etc… I was put on a anti sickness Drive and it helped, I was given it in tablet form for home use. I took it for a couple of days before chemo and for about 5 days after as well with the other anti sickness medication from the hospital. I lost my appetite and went off literally everything. Crackers helped big time (cracker breads) scrambled eggs with rice or boiled eggs, rice pudding and ready brek cereal… All my favourite food I couldn’t swallow. I also tried lots of different diluted juice as each day I went off the flavours. Black tea worked for me in the end and sometimes apple juice, but not cold as I couldn’t handle anything even at room temperature, from the chemo.
Just keep asking for adjustments to his anti sickness medication if needed.
I do hope the consultants appointment goes well…
Michele
Michele, your reply has been more than helpful. I feel so useless not knowing what to feed Alex. He has one scrambled egg for his breakfast every morning. He is off tea and coffee but will drink warm orange juice. Lunch is either liquidised big soups or warm Complan. Like you he had the syringe driver for about a week feeding him with liquid sickness medication. While he was in AOS unit it was discovered that he had a blockage in his stomach, unsalted to the tumour! He spent four days in hospital having a stent fitted! Alex has always been so fit that this has really knocked him for six. We always thought we would take care of ourselves so we could have a long and active retirement, sadly not to be.
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