Found out today

Hi and a warm welcome to the online community

I'm very sorry to read that your dad has recently been diagnosed with stomach cancer and it's natural that you're scared and have lots of questions.

I had a different type of cancer so don't have any experiences to share with you but I noticed that your post hadn't had any replies yet. I have found this information for you from Macmillan on chemotherapy for stomach cancer which you might want to have a read through. If you have any specific questions you would be welcome to post them in the ask a nurse section of the online community and one of the specialist nurses will aim to reply within 2 working days.

Sending a ((hug))

Hi ,

I had stomach cancer so I may be of some help. If you’d like to get in Touch I would be happy to help if I can.

Debra xx

Thank you so much for your reply. 
we found out my dads cancer is inoperable so chemo is the chosen treatment, we haven’t had a treatment plan yet. My dad is very weak as he can hardly eat, we’ve tried milkshakes and protein shakes to help him gain weight but he can’t have much without feeling sick and dizzy. It’s just so hard to watch

Thank you so much for your reply I really appreciate it. I will have a look at the link you’ve sent. 

thank you and take care ️

Hi

i just wanted to say I am in the same boat with my mum. Found out on Friday she has stomach cancer. Don’t know what stage yet. In absolute pieces and concerned once she has her scan that it will alsbe stage 4 (most stomach cancer seems to be). We are all totally devastated and looking for hope if there is any

hope you have some good luck with your dad

faye

Hi

my husband had stage 4 HDGC whcih is a hereditary diffuse signet cell stomach cancer 8 years ago. He had a D2 roux en y gastrectomoy followed by chemo and radiotherapy. he is 70. we thought it had solved it  as he was clear at 5 years but in 2020 it had recurred in the abdominal area. He is still with us and reasonably well and has a good quality of life and although  there is no treament via NHS we are looking outside the NHS for alternative therapies.

however in the meantime the thing I wanted to share is what has been the game changer for us is an NJ nutrional feed. its a tube that is fed into the colon via your nose and drip feeds food overnight. this has saved his life becasue as others have said eating had become a real struggle and we think he would have likely died of starvation before the cancer had progressed. it has significantly changed his quality of life along the way, He is back to going out for a good walk , some gardening and hobbbies and his blood results show a marked improvement in many areas. This effect may not last forever but it has given us yet another 4 months of a good quality of life and taken the pressure of the distress and upset I know the issue of eating, such a basic human need,   causes all of the family. happy to chat to more in detial  if anyone wants to message me. 

please can you send me some info, I’m willing to try anything. I start eox chemo on Tuesday. I have oesophageous and stomach cancer thank you

My partner was very ill off EOX.

He is now on OX. He is coping much better without the E. I know each individual is different but it’s worth asking the question. EpIrubicin made him very sick and he lost chunks of his hair.

I wish you all the best of luck with your chemotherapy.

Epirubicin is really toxic and limits the number of cycles a person can have (normally 3-6 cycles vs 4-8 x FLOT or 8-12 FOLFOX). Internationally it is not regarded as standard of care anymore - there have been numerous studies that show that FOLFOX for stage IV and FLOT for pre-stage IV and possibly stage IV in the otherwise fit and healthy is less toxic and more effective. Most hospitals in the UK have made the change to FOLFOX/FLOT in the last three years but not all have yet. It's a good idea to ask the oncologist if there is a reason specific to your circumstances and your cancer which means they're recommending EOX or ECX, because there could be. But if there isn't, please ask your oncologist to read the FLOT 4 trial results (al-Batran).