Inoperable linitus plastica

Hi, I’m sorry to hear your news, I hope the treatment doesn’t make your dad too unwell, take care 

Hi. While I’m a bit younger than your Dad (50) I have also been diagnosed with Linitis Plastica. It’s considered advanced as spread to the peritoneum was picked up in my laproscopy. 

i started palliative chemo in June of this year. I’m now on round 6 of 8 of Capox. I had a scan in late August which showed the chemo was working - the thickness of my stomach wall has decreased from 1.2 cm to .9. 

Chemo affects everyone differently and it will also depend on the type of chemo. I have an infusion every 3 weeks (including immunotherapy) and pills every day. 

I’ve suffered from a rash and colitis, however the one consistent side effect has generally been fatigue and tiredness. The other side effects have possibly been considered a result of immunotherapy which has then been put on hold for a cycle.

In regards to advice, just be patient and understand he will likely be very tired. It’s a rollercoaster as each cycle may be different in terms of how he’s feeling. 

I am 68 and also have stomach cancer  (adenocarcinoma)  which has spread to my peretoneum,  like your dad i am inoperable and it it classed as incurable.  I had a stent fitted in my pyloric as my cancer was obstructing the outlet causing bloating discomfort and sickness . I am now on my 3rd of 6 3 weekly treatments and  starting my 4th next week..With regards to chemo everyone is different ie type of treatment and side effects ect. I am on chemo and immunotherapy , Oxaliplatin  and  nivalumab and also a daily oral dosage of 2000mg of capecitabine.. my first treatment produce only minor side effects , but the severity increased with each course..my side effects include fatigue which is the worst , neuropathy which causes tingling and numbness in feet and hands and also a sensitivity to cold meaning anything from the fridge can be very uncomfortable.... He probably will find the side effects will fade after the first 7 -10 days ..so drink plenty  , eat little and often this will help bloating , I have anti-sickness and also sachets of a anti constipation medicine again to keep you regular , I hope this allays your fears but please understand these tips are from my experience so far and everyone is different.  I hope you dad gets on OK..

Thank you so much for your kind words x

Thank you so much for the advice. I am sorry to hear you are so poorly   you are so young. Your words are encouraging though. Dad has his first round of chemo at the hospital yesterday & he was ok last night just felt a little sick & tired. You stay strong & keep fighting you have got this

Thank you so much for the advice. Dad has his first round of chemo at the hospital yesterday & he was ok last night just felt a little sick & tired. You stay strong & keep fighting   x