Follow up

Yes the same  for my husband, first one was 3 months then 6 months now a year and this one will just be a phone call, he was told if he has a problem or symptoms to get in touch ( he never had symptoms before so not sure about that) it is scary not having a scan and I can’t understand why they don’t do it. His TG was 16 months ago. Good luck x

It seems to be the norm not to have a scan after the surgery, I’m going to ask the question when I see the consultant x

I think it’s really interesting how the monitoring phase differed from hospital to hospital, it would be great to hear from more people. I had my TG in March and in April I had a CT. I am starting my last 4 chemo treatments, first one is this Thursday. I was told by my oncologist that I will have a CT scan at the year of year one and during that time they will only monitor my blood for elevated markers (which I never had, even at the very beginning). I am just like you, Chloe, very anxious about that as I was also told that the remission is most likely in years one and two. 

It’s so strange!! Where did you get treated and what stage were you?xx

I’m at the Royal Marsden in London. I thought the standard was CT scans every 3 months the first year, every 6 the second year and once a year after that??  I’m stage 2

Where are you with your treatment?

Is it your oncologist that orders your scans or your surgeon? I’m treated at Clatterbridge for chemo, but surgery I’ve decided to go elsewhere x

It’s the surgeon, he’s also at the Royal Marsden. The oncologist was the one who explained the monitoring process at my last appointment. I was quite surprised as I expected a CT 3 months after the last chemo but now I’m being told I won’t get one for a whole year. I’ll be living in fear that entire year! 

It’s very scary! I’m torn between two surgeons at the moment either George Hanna at imperial or Oliver Priest at stoke on Trent. I wanted a surgeon who specialises in radical node removal, but I felt like my local hospital couldn’t deliver that. What type of stomach cancer did you have?

I have intestinal adenocarcinoma with some signet ring cells. I am waiting for genetic testing to see if I have CDH1 mutation as I have family history of stomach cancer. I have 3 kids so I’m praying it’s not genetic, but I have a feeling it is… 

what treatments have you had so far? 

Same as me! I’ve had 3 FLOT so far! Did they say your tumour had a response to FLOT? What was your staging after surgery? Sorry for all the questions x