Feel like I've been ignored. Don't even know where to start. I'm 68 year old type 2 diabetic female. I started getting feelings of nausea back in 2019. Was sent for endoscopy which showed food still left in stomach so had to have this repeated. Same again. Referred to GI. was under Gi on and off over the next few years. I've had various ultrasounds and ct scans, my last ct scan was last May. I had a further blood test to check my liver function which was normal. I was discharged from Gastro in August last year. I felt something had changed. My symptoms were getting worse so I went to see my gp who didn't even examine my stomach and said my symptoms were likely due to a previously diagnosed hiatus hernia. I insisted on being referred to the endoscopy unit. My GP marked my referral as URGENT (22/11/23) I telephoned endoscopy on 5/12/23 only to be told the consultant had changed my appointment to ROUTINE. Unbelievable. How can they do that? How could this cancerous ulcer get to this size and been missed. I feel totally let down after having followed everything I was asked to do. It's the size of the ulcer that's worrying me. Had a blood test done and going for a ct scan on Tuesday I'll come back and update when I know more but for now I'm living with hope
What a worrying time for you! Have you now been diagnosed with stomach cancer, it’s not clear from your post. Hopefully the CT and other tests will give a clearer picture and you can get a treatment plan.
It’s hard until you know what you’re dealing with, especially as you have been feeling unwell for so long!
Jac
Hi Jac
Thank you for your reply. Sorry if my post was unclear. I guess I'm in shock as this was totally unexpected. My GP kept putting my symptoms down to my hiatus hernia but after my gastroscopy the consultant wanted me to wait until my husband arrived before he would tell me anything and then he told us I had a large ulcer that was likely cancerous. He said they'd taken 8 biopsies and referred me straight to hospital. I can't help but worry, mainly because of the size of it. I do hope i can get a treatment plan.I'll come back when I learn more. Thanks again for your reply
Hi there,
So sorry that you find yourself here and I can completely understand why you're angry and upset with all those delays to diagnosis. I just wanted to let you know that my dad, on diagnosis had an ulcer of 7-8cm on endoscopy and he's still here. It will be 7 years in May from his diagnosis. So yes, the size is scary, but try to stay hopeful and positive.
SDH
Knowledge makes us stronger. Research, question, share and demand more from your doctors. Read my profile for my dad's stage IV story.
Thank you so much for your reply which has actually really helped me. I'm so happy that your dad is doing so well after his initial diagnosis. I had a ct scan on Tuesday so I'll update when I know my result. The waiting is the worst part after the initial shock. Thanks again
At my first gastroscopy last November they said my tumour was 3cm, at the second gastroscopy which was done at the same time as the laparoscopy some 3 weeks later they said that it was 3mm.
After asking a number of questions to clarify the size given that the second gastroscopy said the tumour was 10 times smaller and the staging was unclear to me.
I found out that the tumour is 3mm but it is the depth and spread that is also taken into consideration when staging the cancer. After speaking with the Mackmillan nurse she explained this very clearly to me.
So if you get told anything you need explained again keep asking until it is clear to you as the waiting period is the worst time
They pointed me to the following:
www.cancerresearchuk.org/.../stages
I wish you all the very best xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007