Devastated. Just had gastroscopy 7cm ulcer discovered, likely cancerous

Thank you so much for your reply. Since my original post I had a pet scan and was told it hadn't spread which was such a relief and I would be able to have curative surgery ie chemo, sub total resection, more chemo. They did a staging lap on 7th March. We went for results last Wednesday and were told its now inoperable because I now have a very small cancerous tumour on the outside of my stomach. I have to see oncologist but been told possible 4-6week wait. Really don't know what to expect now. Been told I'll be given chemo and maybe radiotherapy depending on how chemo goes.The waiting is the worst part as it's totally out of your hands. Best of luck to everyone going through this

I am so sorry to hear about your diagnosis! You must feel so angry as you had such a long wait and the initial diagnosis was positive!

Don’t give up hope, others have had similar diagnosis and there are treatment options.  Hopefully others will give you more information but chemo does work and there is also immunotherapy.  I know that  SDH has done a lot of research.

Good luck and don’t give up hope!

I’m sorry to hear about your diagnosis, I hope that you don’t have to wait too long as like you said the waiting is difficult. Please don’t give up, they will have treatment options for you xx

I just read SDH's journey and what a truly inspiring story. The hardest part for me and my family is to be given the hope of curative treatment only to have it then taken away. Thank you so much for your reply. It means a lot and I'm still hopeful that I'll be able to have treatment to prolong my life. I'll come back with an update

Thank you so much for your positive message. Much appreciated. It helps that people care 

Hi there, so sorry you're going through this - do feel free to reach out via PM if you'd like xx

Sorry for late reply and thank you for your kind offer. The latest update is that I had to have a blood test on Thursday and have an appointment with the oncologist next Wednesday and although I'm so pleased that things are moving forward, I'm really anxious about what he will tell me. I feel like I'm living on my nerves right now, just like a lot of other people in this situation. My symptoms seem worse especially upper epigastric pain accompanied by nausea and general discomfort in my stomach. Hoping that once I start my treatment plan that these might ease off a bit. Thanks again SDH and your dad's story is so inspiring x

Hi  Scott, do keep us posted on how things go with the blood test and oncology appointment. I can only imagine how hard it is right now, especially with the wait and symptoms - I do hope they can offer you some relief on those symptoms. I remember you saying you were deemed 'incurable' because of a small tumour outside of the stomach. Did you get any insight into the location and type of spread - eg was it a lymph node, was it peritoneal or liver? It's worth asking and finding out exactly why they consider it incurable, because on occasion, what might be deemed incurable by one team might not be by another, dependent on their experience and how up to date they are with what's possible. Also do remember that what is initially considered incurable can change when there's a good response to chemo.

Hoping your symptoms alleviate soon, SDH x

They said it was in the omentum if I remember correctly so I'll make sure to have any questions ready for the oncologist on Wednesday x

Hi, I really hope you get some answers on Wednesday, can they remove the omentum? Sending love and hugs