Well another weekend spoiled by the shocking bile i am suffering with at the moment. It comes and goes anytime of the day nothing helping me to slow or stop it
GI nurse's saying nothing else they can give me just gokng to take time and part of the recovery . Am i wanting to much to soon .
Stay Safe everyone
I am really sorry to hear that your recovery has been so difficult. The bile you are suffering must be very distressing and making you feel awful! It seems strange that there’s no treatment available, is it worth trying to get a second opinion?
Others on this group may be able to share things that have helped them.
Hope you start to feel better soon
Jacqui
Jac
Hi Nicnac, did you follow up on Sue's advice with your doctor or CNS, I will paste it here again incase you missed it.
I’ve found the letter Nic and this is what the surgeon wrote….some prokinetics such as metoclopramide or ondanstetron could be used despite they could cause side effects such as increased bowel movement…… That’s why he never got the prescription as the side effects don’t sound good but then again he doesn’t have bile all that often. It’s called Billary by the way. Good luck xxSue Xx
Also I don’t know if this is allowed to post as it was took off another site for Osophagus cancer on face book as theres no proof. ..A few people took Turmeric and those who did said it helped with bile, my husbands took it for years too so is that why he doesn’t get it much. Someone took turmeric along with something else but I can’t remember what and can’t find out as, as I said it was took off. Can’t hurt to give it a go though also google it. Good luck x
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