After stomach removal

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Hi,im wondering if someone can give advice please. My husband had a total gastrectomy in December and is recovering well but does get a lot of nausea.he isn't ever actually sick but just feels it randomly.we can't seem to find a cause as it can be after eating,before eating or sometimes in the night. Can't find a pattern. Apart from this he is eating well,most food but cant manage bread or toast yet.the nausea does pass but wondered if anyone else has had this problem. Thanks

  • Hi there,

    I had total gastrectomy a year ago and still get nausea but not nearly as much as right after the surgery. I found I am lactose intolerant now and get super nauseous if I eat yogurt or cheese. Milk with my coffee is strangely fine (thank goodness as I love my coffee!). Sugar could also cause nausea. Does it last long? For me it passes after 15-20 minutes so I just have to wait it out. 
    on the upside, a year after the surgery I am feeling great, eating everything I did before (except dairy) in much bigger portions. 
    Best wishes,

    Ewa

  • Hi, it’s still early days for him, I took anti sickness tablets for a while after the surgery, I would ask for a prescription x

  • Thankyou,its good to hear other people have this and I'm not the only one 

  • Thanks,i have asked for some from g.p 

  • Hello l had the operation just over two years ago and I am now eating normally. It took awhile for me to eat normal food and only small amounts. I went through the same as your husband. I still have a stent replaced every few months to keep my throat open. Hopefully my next operation the surgeon is hoping to leave it out. May of ask does your husband attend any of the local support groups,as I find them a great comfort I attend two every month. These have helped me understand that what I was going through lots of other people were likewise going through it. Also I started going for a morning walk going longer as time passed. Hopefully this will help that he's on a long journey and it takes time, but it does get better.

  • Thanks for message ,my husband has just started going for a short walk each day as he realised his legs were getting very weak.now the weather is warmer he decided to start.he still feels very cold all the time since chemo. Why did you have a stint ? He hasnt had that. Good advice about a group but he can't be persuaded to go! 

  • Good morning. Good to hear that your husband is feeling better and walking. I have a stent in as when I had the operation I was told that the nerves that control the valves too and from the stomach were removed and that these will either stay open or closed. The bottom one stayed open but the top value remained closed so I have stent in every few months. Hopefully the next one might possibly the last one needed. As far as the support groups I find that they are a great sauce if information and help. I go the one set up by the specialist cancer nurse, so I'm meeting follow patients how are at different stages of the journey e.g first meeting l met a lady who had the operation 12 years ago another gentleman had it 5 years ago and was back working. Also I get free coffee made with full fat milk and chocolate biscuits. I also met the surgeon who operated on me and many others when came and gave a talk on the subject. I know it's not for everyone,but I find  comfort and enjoy meeting people who have or are going through the same thing. Hopefully this helps. 

  • Thanks for reply,i didn't know that could happen!  I'm like you and think a support group is a great idea. Hope you keep well and good luck with stent