I don’t even know where to begin, I’m Kirsty age 45 and I was diagnosed with T4NXM1 stomach cancer in September 2024. My stomach perforated and ended up in A&E having surgery where they took biopsies and a week later was told I had cancer.
I started having symptoms of fullness and reflux in the June but just kept shrugging it off until it got to August when I was noticing water not going down very well, also noticed my Clothes where starting to get baggy. Took myself to the doctor who tested me for h pylori which came back positive.
They started me on a course of antibiotics and a 3 week follow up consultation, the antibiotics didn’t help very much. They then proceeded to prescribe me a second course but my stomach perforated before I got to start them.
I have had 5 rounds of folfox, 3 of those included immunotherapy but that had to be stopped as it caused issues with my kidneys resulting in a two week hospital stay with nephritis. I have a scan in two weeks time but feel so nervous to what it will show.
Bless you Kirsty. Sending a big hug. It's a pity that you can't have your scan sooner as that would take some of your anxiety away. Is there any way you could ask for a cancellation appointment on the day. I only say this as my husband was having chemotherapy in the morning and I managed to get him in for a scan in the afternoon by phoning the hospital. It's a practical measure that's worth pursuing.
Hi Kirsty, how are you doing? Just thought I’d check in with you for some positive outlook. I had similar but no perforation and over a year ago I had a total gastrectomy. It was life changing for me but I’m so grateful for a great change of a future cancer free. It took a while to adjust to my new plumbing system but I eat practically everything except a few food items. I really hope everything is going well for you. Milly
Hi Milly, thanks for your message. I’m doing ok. Had 7 rounds of chemo so far. Another 5 to go before next review and scan. Iv been told stomach removed might not be possible!
did you also have chemotherapy before surgery? Nice to hear a positive story. Xx
Hi, my husband had his stomach removed in December after a shock diagnosis of stomach cancer in august. He only went to the g.p as he kept burping day and night,no other symptoms. He only managed 3 out of 4 chemo sessions of flot as he was so poorly after the third. I am amazed how quickly he recovered after the op as he is 77. I hope you get good news but if you do have the op I'm sure you will recover well and it is not as scary as it seems .best wishes xx
No I didn’t but I am living in Portugal and maybe they approach it differently? I was scheduled for surgery four days after the diagnosis, so I hit the floor running. The surgeon said a total gastrectomy was the only option as it has penetrated the wall and in 5 lymph nodes.I was told I would need chemo following surgery but I lost so much weight they postponed it then told me it was too late to be effective. I was a bit scared for about a year but just had upper endoscopy and colonoscopy and it was all clear so I’m so relieved and excited to fulfil goals I never got around to. I sincerely hope the treatment is successful and then you can commence the next phase. We will be here to offer support regardless of the outcome.
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