New diagnosis of stomach cancer

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I don’t even know where to begin, I’m Kirsty age 45 and I was diagnosed with T4NXM1 stomach cancer in September 2024. My stomach perforated and ended up in A&E having surgery where they took biopsies and a week later was told I had cancer. 

I started having symptoms of fullness and reflux in the June but just kept shrugging it off until it got to August when I was noticing water not going down very well, also noticed my Clothes where starting to get baggy. Took myself to the doctor who tested me for h pylori which came back positive.

They started me on a course of antibiotics and a 3 week follow up consultation, the antibiotics didn’t help very much. They then proceeded to prescribe me a second course but my stomach perforated before I got to start them. 

I have had 5 rounds of folfox, 3 of those included immunotherapy but that had to be stopped as it caused issues with my kidneys resulting in a two week hospital stay with nephritis. I have a scan in two weeks time but feel so nervous to what it will show. 

  • Sending love and strength x

  • Bless you Kirsty. Sending a big hug.  It's a pity that you can't have your scan sooner as that would take some of your anxiety away. Is there any way you could ask for a cancellation appointment on the day.  I only say this as my husband was having chemotherapy in the morning and I managed to get him in for a scan in the afternoon by phoning the hospital. It's a practical measure that's worth pursuing. 

  • Hi, I’m sorry to hear your news, it’s a difficult journey for you, everyone here will show their support, love and hugs x

  • It's such a shock to the system. Here with you sending strength. Heart️ 

  • Sending a hug your way.My dad was diagnosed with stomach cancer in January and it's been one big blur since. I must say though the NHS have been very prompt with tests etc c. Hope you get a scan soon x

  • Hi Kirsty, how are you doing? Just thought I’d check in with you for some positive outlook. I had similar but no perforation and over a year ago I had a total gastrectomy. It was life changing for me but I’m so grateful for a great change of a future cancer free.  It took a while to adjust to my new plumbing system but I eat practically everything except a few food items. I really hope everything is going well for you. Milly

  • Hi Milly, thanks for your message. I’m doing ok. Had 7 rounds of chemo so far. Another 5 to go before next review and scan. Iv been told stomach removed might not be possible! 

    did you also have chemotherapy before surgery?  Nice to hear a positive story. Xx

  • I hope things improve for you and you get to have surgery, maybe ask for a second opinion if they still say surgery isn’t possible. I had my op last April and things are going well. Thinking of you, take care x

  • Hi, my husband had his stomach removed in December after a shock diagnosis of stomach cancer in august. He only went to the g.p as he kept burping day and night,no other symptoms. He only managed 3 out of 4 chemo sessions of flot as he was so poorly after the third. I am amazed how quickly he recovered after the op as he is 77. I hope you get good news but if you do have the op I'm sure you will recover well and it is not as scary as it seems .best wishes xx

  • No I didn’t but I am living in Portugal and maybe they approach it differently? I was scheduled for surgery four days after the diagnosis, so I hit the floor running. The surgeon said a total gastrectomy was the only option as it has penetrated the wall and in 5 lymph nodes.I was told I would need chemo following surgery but I lost so much weight they postponed it then told me it was too late to be effective. I was a bit scared for about a year but just had upper endoscopy and colonoscopy and it was all clear so I’m so relieved and excited to fulfil goals I never got around to. I sincerely hope the treatment is successful and then you can commence the next phase. We will be here to offer support regardless of the outcome.