Add-Apspirin Clinical Trials

Hi,I had a different cancer - breast cancer nearly 2,5 years ago and I was offered the Aspirin trial too.First I have agreed but after reading the side effects which you can have from taking aspirin every day for 5 years I have refused.I am not medically trained but I didn't want to have a stomach issues or blood issues and I was happy to not to see the hospital anymore.With the trials you probably will have to have more often blood test and other tests.

I am still ok  2,5 years after and I am drinking my turmeric tea instead:)

Anyway I didn't want to discourage you just was my opinion.

I wish good luck with it the trial anyway.

Thanks for the information. There are 5 types of cancer in the study and breast cancer is one of them. I too have looked at the risks but from my discussions with the oncologist and the clinical trial nurse at my hospital I understand there is an 8 week run in period where you are checked regularly for any adverse effects before you are allowed on the trial and these do include blood and urine tests. These will continue if you are accepted. I am under the care of my surgical team for the next 5 years anyway and they have told me appointments for the trial will be scheduled alongside the surgical team appointments so I only have one visit not two. We will see how that goes! 

I will continue on the basis either side can withdraw at any time and I don’t need to provide any reasons but I do appreciate that there may be issues and if I experience any side effects of aspirin, assuming I am not in the placebo group if accepted onto the trial, will withdraw immediately. 

Appreciate the time spent to replay! 

Thanks

Karen

Hi Karen, 

I had a total gastrectomy in October 2018 and am also on the Add Aspirin trail. I have the same information as you . I'm in Leicester and my oncologist - Prof. Anne Thomas is heading the trail here in Leicester. I'm now on week 3 of the 8 week lead up. Although I don't have a stomach at all the protocol of the trail says I have to take a Lansaprozole tablet in the morning before the Aspirin. My surgeon said as I don't have a stomach the Lansaprozole won't do anything to me. 

I haven't felt any side effects but am still having digestive issues some days - can't say if these may be caused by the Aspirin.

I.agreed to it for the same reasons as you.

Hi. I’m also in the Add Aspirin trail. I started the trial period on october no side effects and carried on after that  starting the tablets that we are not suppose to know what are they. I have a blood test and a questioner every three months and no side effects. I agreed to take part mostly for the same reason plus if there is any chance of this working and no need of chemo ever in my life again it is worth it.

Hi

I was asked yesterday if I was interested in the Add Asprin trial when I am allowed to start it. I am currently doing chemo 6/30 weeks in for rectal cancer, after surgery.

Haven't discussed with either colorectoral or oncology consultants yet, see them at week 8, but I am inclined to join for similar reasons to yourself.

I wonder if, as this is a multi cancer trial, whether a separate group would be better so we can support each other? Else we might not find people.

Mary

Sound like a good idea to me, although I have no idea how or who can make the group.